Hewitt
Active member
- Joined
- Dec 8, 2015
- Messages
- 53
- Reason
- Loved one DX
- Country
- US
- State
- NC
- City
- Winston-Salem
My sister has had ALS for two years and has been under hospice care for the last 9 months. She has just recently started experiencing occasional pain (as evidenced by increased respirations - she can't communicate otherwise), for which she is given morphine. This has only happened a few times so far, but her husband has been instructed to check her respirations a few times a day and administer the morphine as needed. The nurse said that ultimately their goal would be to give her enough morphine to keep her from awakening and experiencing pain, although she didn't indicate that there was any urgency about her present situation. Is the pain associated with ALS multifactorial, or is it generally neuropathic? I'm sure every case is different, but does this sound as if it might signify a progression in her ALS? I would be grateful for any advice from those who have experience in the course of the disease. Thanks very much--