- Joined
- Nov 18, 2014
- Messages
- 4,887
- Reason
- PALS
- Diagnosis
- 08/2015
- Country
- US
- State
- South
- City
- The Beach
On my last trip to ALS doctor in Jacksonville, he said my level and type of pain could possibly be nerve root related. I'm having more and more sensory issues and now my legs are tingling constantly and my back hurts badly. It even hurts when I'm in the pool doing gentle ROM. It hurts when I sit, when I walk, when I bend over, when I stand. He said, "if you live long enough with ALS, there are bound to be other issues you're going to deal with that may or may not be caused by the disease." That statement didn't even make sense but I just wanted to get out of there.
So he wants to do an MRI of my lumbar spine, even though the pain is mainly in my T-spine where I have curvature of the spine that has gotten worse since diagnosis. He said the contrast MRI would show damage to nerve roots.
To add insult to injury, I was diagnosed with IBS but at least I know what to do about that and have effective treatment methods to prevent another anal fissure.
The other finding is that my TSH has gone high again. Thank you Hashimoto's.
He also said he couldn't rule out another autoimmune disease since they run in my family and my ANA was up again.
It feels like my body is turning on me.
Nerve pain is horrible. It's unlike anything I've ever experienced.
I just look forward to bed each night and getting through the day.
I still go in the pool most days but it isn't like last year. Last year the pain nowhere near what it is now.
So he wants to do an MRI of my lumbar spine, even though the pain is mainly in my T-spine where I have curvature of the spine that has gotten worse since diagnosis. He said the contrast MRI would show damage to nerve roots.
To add insult to injury, I was diagnosed with IBS but at least I know what to do about that and have effective treatment methods to prevent another anal fissure.
The other finding is that my TSH has gone high again. Thank you Hashimoto's.
He also said he couldn't rule out another autoimmune disease since they run in my family and my ANA was up again.
It feels like my body is turning on me.
Nerve pain is horrible. It's unlike anything I've ever experienced.
I just look forward to bed each night and getting through the day.
I still go in the pool most days but it isn't like last year. Last year the pain nowhere near what it is now.