- Jul 4, 2008
I have been reading the posts for a while now but have not written before. I am currently caring for my Mom who was diagnosed with ALS in June 08. She began falling down about May 07 and now her legs are completely immobile. Mom is not very computer knowledgable so she asked me to ask a question for her. She experiences a LOT of pain in her legs and back. She calls it "nerve" pain and says is burns and feels like her legs are on fire. She was told by her doctor that "there is no pain with ALS" so she wonders if what she is experiencing is from something else or if her doctor was wrong. Sometimes her feet and legs hurt so much she can't stand the covers on them. It's like the nerves are super sensitive although she can't move them. It seems to be worse if they get warm. Thanks for helping us with this, I just don't know what to tell her.