siuska
Active member
- Joined
- Jan 11, 2008
- Messages
- 78
- Reason
- Learn about ALS
- Country
- US
- State
- michigan
- City
- detroit
Hi,
i am starting to have trouble typing...my fingers just aren't going where i need them to go...i don't notice any atrophy or cramping...just a funny, can't quite go where i want them to go...another funny feeling is that my tongue feels too big for my mouth...i am not tongue twitching and can move it side to side, but i get scared (and have) choked a little bit...this i noticed over the past few days. Another thing is i did notice a slight jaw tremor and flashes (like hot white darts of light) in my vision, although i do have Lasik...
..last summer i started twitching (but didn't really notice except the when laying down the bed would sporadically shake) then, last fall i started twitching very noticably body wide along with exercise fatigue and muscle cramps...i posted my EMG here and it did find abnormalities, but the doctor's think peripheral neuropathy with some slight left leg atrophy. No upper EMG was done because other than cramp/fascic, i didn't have weakness or uncoordination...i am going to the Physical Therapist to try and build up muscle so i can go back to work. i am weak and unsteady on my legs...i thought this diagnosis solved everything...now, i'm scared all over again. i am running out of test options to look for causes...
i noticed a lot of people here have similar things going on...the only thing left is upper emg and muscle biopsy and spinal tap...MRI clean, blood work clean...oy veh. Wouldn't this be extremely quick progression for ALS? onset of six months? i mean, if it is, maybe that would be a good thing? quicker than slower?
i need to have surgery to repair some damage for a previous surgery gone awry, but i keep stalling...if i have ALS, then having this surgery is just a plain waste of time and money...why is it, that noone in the medical community seems to know what end is up...even the specialists...jeez, i hate waking up every day wondering if i can get out of bed without falling down...and yes, it's gotten to that point.
i'm on my third neuro...and i whipped them all like a heartless hussy, but i still don't get anywhere with treatment/diagnosis...
i'm single and i had to move to my mom's (my 82 year old mom) because i am having these difficulties...how humiliating...know in good neuros in Columbus, Ohio?
i am starting to have trouble typing...my fingers just aren't going where i need them to go...i don't notice any atrophy or cramping...just a funny, can't quite go where i want them to go...another funny feeling is that my tongue feels too big for my mouth...i am not tongue twitching and can move it side to side, but i get scared (and have) choked a little bit...this i noticed over the past few days. Another thing is i did notice a slight jaw tremor and flashes (like hot white darts of light) in my vision, although i do have Lasik...
..last summer i started twitching (but didn't really notice except the when laying down the bed would sporadically shake) then, last fall i started twitching very noticably body wide along with exercise fatigue and muscle cramps...i posted my EMG here and it did find abnormalities, but the doctor's think peripheral neuropathy with some slight left leg atrophy. No upper EMG was done because other than cramp/fascic, i didn't have weakness or uncoordination...i am going to the Physical Therapist to try and build up muscle so i can go back to work. i am weak and unsteady on my legs...i thought this diagnosis solved everything...now, i'm scared all over again. i am running out of test options to look for causes...
i noticed a lot of people here have similar things going on...the only thing left is upper emg and muscle biopsy and spinal tap...MRI clean, blood work clean...oy veh. Wouldn't this be extremely quick progression for ALS? onset of six months? i mean, if it is, maybe that would be a good thing? quicker than slower?
i need to have surgery to repair some damage for a previous surgery gone awry, but i keep stalling...if i have ALS, then having this surgery is just a plain waste of time and money...why is it, that noone in the medical community seems to know what end is up...even the specialists...jeez, i hate waking up every day wondering if i can get out of bed without falling down...and yes, it's gotten to that point.
i'm on my third neuro...and i whipped them all like a heartless hussy, but i still don't get anywhere with treatment/diagnosis...
i'm single and i had to move to my mom's (my 82 year old mom) because i am having these difficulties...how humiliating...know in good neuros in Columbus, Ohio?