SpeedyMarie
Active member
- Joined
- May 24, 2019
- Messages
- 38
- Reason
- PALS
- Diagnosis
- 08/2019
- Country
- US
- State
- TX
- City
- Houston
Hey Everyone!
Over the past month or so it seems if I try to do things (walk with cane or walker) It’s been hot in Texas but just being active not running marathons or anything -as if I could lol. I’d try and fall. It seems I sprain muscles easier and have had some bad bouts of spasticity. One busy with visiting family and out in the heat. I woke up with searing pain in my hand that ended up going up across into my chest and down my other arm. I couldn’t sit up even scared me. Went to the ER vomited on the way. The ER doctor asked me why I was there I have ALS it’s spasticity. Made me feel awful but I was kinda out of it. I was more worried about electrolyte issues and I have a history of Prizemal’s Angina. Cramps in the cardiac arteries. I was out of it but ALS does not cause chest pain or EKG changes. Poo on her. The gave me methocarbamol IV and a script to take home with cardiology f/u. That settled. This time school clothes shopping a few stores and that night spasticity worsened again. It’s like muscles are hard and don’t function well along with pain for a bit. I’m UMN ALS and a slow progressor. I do have a chair but want to walk while I still can. Any tips with figuring out activity thresholds? Any tips? Thanks
Over the past month or so it seems if I try to do things (walk with cane or walker) It’s been hot in Texas but just being active not running marathons or anything -as if I could lol. I’d try and fall. It seems I sprain muscles easier and have had some bad bouts of spasticity. One busy with visiting family and out in the heat. I woke up with searing pain in my hand that ended up going up across into my chest and down my other arm. I couldn’t sit up even scared me. Went to the ER vomited on the way. The ER doctor asked me why I was there I have ALS it’s spasticity. Made me feel awful but I was kinda out of it. I was more worried about electrolyte issues and I have a history of Prizemal’s Angina. Cramps in the cardiac arteries. I was out of it but ALS does not cause chest pain or EKG changes. Poo on her. The gave me methocarbamol IV and a script to take home with cardiology f/u. That settled. This time school clothes shopping a few stores and that night spasticity worsened again. It’s like muscles are hard and don’t function well along with pain for a bit. I’m UMN ALS and a slow progressor. I do have a chair but want to walk while I still can. Any tips with figuring out activity thresholds? Any tips? Thanks