Bankerman93
Member
- Joined
- Apr 14, 2019
- Messages
- 13
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- US
- State
- MO
- City
- Platte City
First i would like to thank everyone in this forum for providing there experiance and knowledge, and i hope for a cure soon. would also like to state that i have never had HA and my symptoms did not start with twitching.
I won't make this a novel so here goes.
Sept.
Mild fatigue and felt i got wore out easy.
Oct.
went to the doctor, said its nothing.
-Fatigue stayed the same.
-felt weak
-twitching in right ab muscle
Nov.
Doc. referred me to an RA. (grandma has RA)
-Did lots of blood work and found nothing except CPK lvl were high.
-Fatigue,weakness, and twitching started all over my body.
-then felt excessive saliva in mouth and constantly have to swallow it or spit it out.
RA ref to a neruloigist because she could not find anything wrong.
had to wait 3 months new spymtoms appeared
-joints pop all the time
-random pains or cramps in body, don't know the difference
-knee buckling a lot
Feb
-met Nero sent me in for more blood work, MRI's, EMG , NVC all came back as "Normal"
sent back to the RA who said it's Fibro and CFS, but wanted me to follow up with the Nero.
At this point i accepted the Fibro and CFS DX but about a month after that symptoms that don't match fibro appeared.
- tight thoart
-shortness of breath
-constant yawning and tears in eyes
excessive saliva
and all the before symptoms, i haven't had a good day.
Nero said the fibro dx was lack of a better term "BS" he said he thinks i might have some post viral infection or somthing, he prscribed me Amantadine which has not helped at all.
I know i haven't had any muscles failing yet but could this be the start of ALS/MND? it's just concerning because it's i can barely make it through the day at my job, and can't do anything i use to be able to do very well. i'm at a lose and know there is something wrong. any insight would be very helpful:grin:
I won't make this a novel so here goes.
Sept.
Mild fatigue and felt i got wore out easy.
Oct.
went to the doctor, said its nothing.
-Fatigue stayed the same.
-felt weak
-twitching in right ab muscle
Nov.
Doc. referred me to an RA. (grandma has RA)
-Did lots of blood work and found nothing except CPK lvl were high.
-Fatigue,weakness, and twitching started all over my body.
-then felt excessive saliva in mouth and constantly have to swallow it or spit it out.
RA ref to a neruloigist because she could not find anything wrong.
had to wait 3 months new spymtoms appeared
-joints pop all the time
-random pains or cramps in body, don't know the difference
-knee buckling a lot
Feb
-met Nero sent me in for more blood work, MRI's, EMG , NVC all came back as "Normal"
sent back to the RA who said it's Fibro and CFS, but wanted me to follow up with the Nero.
At this point i accepted the Fibro and CFS DX but about a month after that symptoms that don't match fibro appeared.
- tight thoart
-shortness of breath
-constant yawning and tears in eyes
excessive saliva
and all the before symptoms, i haven't had a good day.
Nero said the fibro dx was lack of a better term "BS" he said he thinks i might have some post viral infection or somthing, he prscribed me Amantadine which has not helped at all.
I know i haven't had any muscles failing yet but could this be the start of ALS/MND? it's just concerning because it's i can barely make it through the day at my job, and can't do anything i use to be able to do very well. i'm at a lose and know there is something wrong. any insight would be very helpful:grin: