Willy.Fouts
Member
- Joined
- Nov 19, 2013
- Messages
- 10
- Reason
- DX UMND/PLS
- Diagnosis
- 08/2013
- Country
- US
- State
- CA
- City
- San Francisco
My timeline, help.
Hello I am new to this forum and forums in general. All feedback would be appreciated.
I am unsure how to pour out all my details. So here we go.
As of right now I am undiagnosed, but my neurologist is comfortable with calling it PLS.
To date: I have a hard time bending my knees when I walk and just lifting my knees in general up and down the stairs. My feet are constantly cold. I can't wiggle my toes, and I can hardly move my ankles. I can only lift the heel of my foot and the back of my leg all but just a couple inches off the ground. And when I step off a curb or walk down the stairs whatever foot is last slips off. I also have very poor balance and without my hands would be on the ground constantly. My lower back is very weak and aches. Below is a little timeline I have. However I can recall occasions as far back as when I was 10 or 11. But this is where I believe the onset started.
-summer of 2011: I went for a run on the track. I was able to run only 2 laps before my feet would start slapping the ground. i was unable to run any further and was unable to lift my knees. At the time I did not think anything of it, just thought I was out of shape.
-fall of 2011: I would play pick up basketball at my gym and was able to run up and down the court. But I was very slow and couldn't move to my side to catch a bad pass. Once again the only thing I was thinking was that I was out of shape.
-winter of 2011: I came back from college and would play basketball with my friends. This was the last time I even attempted to play any active sport. I was unable to run at all, and could not shuffle my feet side to side, let alone jump. Still the only things I was thinking, was that i really need to get in shape. After that I would go on the same track at my high school and attempt to run. This time I was only able to run a half lap before my feet would slap the ground. I also tried to run sprints, and I would end up falling over from letting my upper body get to ahead of myself.
-January 2012: I was in a car accident and hurt my groin. Before the accident I walked completely normal and fine, but after I immediately started walking with a limp. After I was heeled from my pain, I thought I was back to my norm. However others would comment on my limp that I was walking with. At this point I couldn't stop walking with a limp. But I could still walk fine at a good pace with good balance. It just looked funny.
-March 2012: I finally decide to do something about my limp. So I have Xray's done. They come back normal, and for some reason I had bloodwork done as well and that turned out that I was anemic as well as having a low WBC. I figured that was because of my poor diet in college. I am no longer anemic, but still show to this day to have a low WBC.
-May 2012: At this point I am no longer able to run more than 20 feet and am starting to trip from walking. Not tripping to the ground, but just tripping and losing my balance. I also am starting to feel the early stages of spasticity. But just from when I would wake up in the morning.
-June 2012: I return home from school and start talking to my dad about my issues. I mention that my feet are cold and feel numb.
-Summer of 2012: Finally I knew that something was wrong, I wasn't just out of shape. Over the whole summer I started doing the Insanity work out video. Obviously not being able to do all of the exercises, but I was able to do some. I was working full time, and really just had sort of a limp and a drop foot action in my gait along with spasticity.
Than there was a good 4-6 month plateau in the progression of my symptoms. Every thing stayed the same, leading me to think that it may not get any worse.
January 2013: My PT points out that my lower back is very weak, and I start to take notice of my poor posture.
February 2013: I finally start to take baclofen, which at the time did wonders for me.
May 2013: I have my ITB trial to help combat my spasticity. I also by myself a cane to use when I am out and about with friends and others. However I would manage without it when I was by myself.
August 2013: My balance at this point has progressed since the beginning of the year to the point where I need the cane full time. It is also where I start to notice my back getting sore and aching.
On January 6th I will be getting the Baclofen Pump.
Is this at all similar to anybody else?
Thank you for taking the time to read it.
Hello I am new to this forum and forums in general. All feedback would be appreciated.
I am unsure how to pour out all my details. So here we go.
As of right now I am undiagnosed, but my neurologist is comfortable with calling it PLS.
To date: I have a hard time bending my knees when I walk and just lifting my knees in general up and down the stairs. My feet are constantly cold. I can't wiggle my toes, and I can hardly move my ankles. I can only lift the heel of my foot and the back of my leg all but just a couple inches off the ground. And when I step off a curb or walk down the stairs whatever foot is last slips off. I also have very poor balance and without my hands would be on the ground constantly. My lower back is very weak and aches. Below is a little timeline I have. However I can recall occasions as far back as when I was 10 or 11. But this is where I believe the onset started.
-summer of 2011: I went for a run on the track. I was able to run only 2 laps before my feet would start slapping the ground. i was unable to run any further and was unable to lift my knees. At the time I did not think anything of it, just thought I was out of shape.
-fall of 2011: I would play pick up basketball at my gym and was able to run up and down the court. But I was very slow and couldn't move to my side to catch a bad pass. Once again the only thing I was thinking was that I was out of shape.
-winter of 2011: I came back from college and would play basketball with my friends. This was the last time I even attempted to play any active sport. I was unable to run at all, and could not shuffle my feet side to side, let alone jump. Still the only things I was thinking, was that i really need to get in shape. After that I would go on the same track at my high school and attempt to run. This time I was only able to run a half lap before my feet would slap the ground. I also tried to run sprints, and I would end up falling over from letting my upper body get to ahead of myself.
-January 2012: I was in a car accident and hurt my groin. Before the accident I walked completely normal and fine, but after I immediately started walking with a limp. After I was heeled from my pain, I thought I was back to my norm. However others would comment on my limp that I was walking with. At this point I couldn't stop walking with a limp. But I could still walk fine at a good pace with good balance. It just looked funny.
-March 2012: I finally decide to do something about my limp. So I have Xray's done. They come back normal, and for some reason I had bloodwork done as well and that turned out that I was anemic as well as having a low WBC. I figured that was because of my poor diet in college. I am no longer anemic, but still show to this day to have a low WBC.
-May 2012: At this point I am no longer able to run more than 20 feet and am starting to trip from walking. Not tripping to the ground, but just tripping and losing my balance. I also am starting to feel the early stages of spasticity. But just from when I would wake up in the morning.
-June 2012: I return home from school and start talking to my dad about my issues. I mention that my feet are cold and feel numb.
-Summer of 2012: Finally I knew that something was wrong, I wasn't just out of shape. Over the whole summer I started doing the Insanity work out video. Obviously not being able to do all of the exercises, but I was able to do some. I was working full time, and really just had sort of a limp and a drop foot action in my gait along with spasticity.
Than there was a good 4-6 month plateau in the progression of my symptoms. Every thing stayed the same, leading me to think that it may not get any worse.
January 2013: My PT points out that my lower back is very weak, and I start to take notice of my poor posture.
February 2013: I finally start to take baclofen, which at the time did wonders for me.
May 2013: I have my ITB trial to help combat my spasticity. I also by myself a cane to use when I am out and about with friends and others. However I would manage without it when I was by myself.
August 2013: My balance at this point has progressed since the beginning of the year to the point where I need the cane full time. It is also where I start to notice my back getting sore and aching.
On January 6th I will be getting the Baclofen Pump.
Is this at all similar to anybody else?
Thank you for taking the time to read it.