2nd diagnosed
I've been looking around various sites and a few people have suggested that Lyme disease or thyroid disorders, amongst other things, could cause symptoms that may be mistaken for MND. My mother has had thyroid problems, arthritis , sciatica, and recently, slight hair loss. Do these point to another disease, or are they irrelevant?
Hi Steve,
your note makes me wanto get my mother tested by an als specialist asap!
The diagnosed may be true or not - but I want to make absolutely sure!
People in uk dont seem to want a second diagnosed like I do - in fact consultants in Scotland seem to take personal offence should you wish you PAL to visit an MND specialist!
I want to know her actual diagnosed - like most in UK all that is disclosed is that the patient has mnd....
That is few and far between - since my mother suffer from bulbar onset that cuts her lifespan to 6 months!
My major concern is that she had flu like symptoms in April and began developing slurred speech - but since she visited her GP 5 mths after developing symptoms and being admitted to a neuro ward - she was diagnosed with mnd after 5 days!
I thought it took at LEAST 2 weeks to discover Lyme in a patients bloodwork?
What worries me is since starting Riluzole - OVERNIGHT - my mothers voice worsened and became more slurred than normal. She is distraught as she is an extremely vocal person - and also noticed this shift. In her other tests it proved she was 'abnormally' healthy for a female of her age..... why then the ony option after 6 days being mnd?
Very confused!
How can doctors know so SOON that this is the diagnosed...
This instance - according to natural science- beggars belief due to the swift diagnosed......
I can see through symptoms why docs think mnd - but i can also see other things like PLA, hypoglossal palsy - due to the fact she has a totally clean emg served by a tech - not a consultant - plus she is feeking acute pain from her tongue to the back of her throat - which she has done since she felt a 'ping' whilst verbally arguing with a delinquent work collegue.
I have since managed to fix a second opinion with an ALS specialist...
at least then if it turns out to be the worst - at least we know the prognosis! Before - the statement mnd - left us utterly in limbo!
Hope all is well with you mother - so much struggle it seems to have them seen by specialists in this field!
Do your best. I'm just hoping the CNST has misdiagnosed - missing something structural which could be amiss. I know I sound slightly dissalusioned - but this is purely as my mother doesnt fully grasp the entirety of the situation! She is asking me day to day - bit by bit what this diagnosed holds for her!
Its heartbreaking watching her realise the scale of this illness! I wish t werent me who was giving her the news - but sine the consultant isnt being forthcoming - I feel its my duty.:|