- Aug 22, 2013
- Cherokee Village
It appears that there are only 2 posters on this thread that actually have ALS and neither mind doing an interview. The rest of you are non-pals and shouldn't even being replying!
I can't speak for the other caregivers, but in my case I post as if I am the person with ALS because I have been by my wife's side every step of the way.
From her frustration with slight speech difficulty, to diagnose , to her using an ipad, feeding peg, seeing her turn colors as she laid on the floor of a fast food after choking
Saw her go from not speaking to a cane,a walker ,a wheel chair and as of July totally paralyzed and bedridden 24/7.
I am the one who changes her diapers and cleans her up, tries to bring a slight smile to her face.
I feel I am qualified to speak as if it was me that has the disease because I am confident I know more from experience about that disease than any of you who are recently diagnosed.
My wife would be the one posting if she wasn't paralyzed.
I will post anyplace on this forum I feel I can offer some insight and those that don't like it can tell the moderator to give me the boot.
In this final stage of my wife's ALS I have heard every "expert" offer advice.
"Experts" that don't even know what the disease is, yet THINK they have solutions.