bassy77
Member
- Joined
- Jul 5, 2019
- Messages
- 12
- Reason
- Loved one DX
- Diagnosis
- 11/2018
- Country
- US
- State
- MA
- City
- North Falmouth
My mother was diagnosed with ALS last fall. She just turned 70 last month and is doing pretty well. Still walking with the help of leg braces and a cane, seems to have good hand and arm strength and so far no issues talking or swallowing. She lives in NC and has lived on her own for the last 16 years or so. She has a fantastic support system of friends in NC, but is feeling like she wants/ needs to move here (MA) to be closer to my family (as well as my sister who lives in NYC). She has a partner in NC, but they have lived separately during the course of their 15 years together. She doesn’t want to be a burden to him and he isn’t the type to step up and tell her to move in with him.
So we have been looking at options for her to move here. We have the opportunity to build a small house directly beside our house. It could be accessible and incorporate items that would be needed as the disease progresses. How realistic is it to think that we could find care for her given that she’ll be living alone? She does have long term care insurance that appears to cover some in-home care. Alternatively, should we be looking at assisted living facilities? She would like to build the house to move into, but I want to make sure that financially and logistically it is the best decision for her.
It is difficult to plan given that the rate of progression varies so much from patient to patient, but so far hers appears to be fairly slow to progress. But would just be interested to hear your thoughts.
So we have been looking at options for her to move here. We have the opportunity to build a small house directly beside our house. It could be accessible and incorporate items that would be needed as the disease progresses. How realistic is it to think that we could find care for her given that she’ll be living alone? She does have long term care insurance that appears to cover some in-home care. Alternatively, should we be looking at assisted living facilities? She would like to build the house to move into, but I want to make sure that financially and logistically it is the best decision for her.
It is difficult to plan given that the rate of progression varies so much from patient to patient, but so far hers appears to be fairly slow to progress. But would just be interested to hear your thoughts.