Opinions please/ Worried

Nikki J

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Well you ruled out respiratory involvement. The findings in your pinky could be many things including from your neck you asked your doctor why yo u said but did not tell us her response or her plan/ recommendation. If she had a reasonable plan ( which could be follow up at an interval or see a different specialty or pt) it would seem sensible to follow it.

the neuromuscular specialist was pretty definite that it wasn’t ALS but if you are dissatisfied with your current plan you might be able to send your emg report and note for his review. Don’t be surprised if he chooses not to see you again though.
 

Georgi88

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Nikki, thank you for your fast response.
I was hoping to get an opinion from you.

My neurologist thinks, that it must be radiculopathy causing my problems. She says, that this could explain also the atrophy on my hand and arms ( more on the left side ) . She prescribed calcium, vitamin D, Magnesium and rest ... But I am resting already few months. I work from home. She can explain the widespread fasciculations, dyspnea and cramps ( visible to her also ) with the amount of anxiety for the last months. But she can't explain the muscle wasting on my both feet ( more on the left again ). If it was only my arms I would agree 100% with her , but when the problems are also in the legs. In the last 2-3 weeks I started to have the same thing in my left foot ( like in left hand ) The foot is like uncoordinated, I really don't know how to describe it correctly. Plus the insomnia I have already few months. Even if I take some pills for sleep , I just wake up in 3-4 hours and I can't fall asleep again. I never had those things, that's why I am so worried.
 

lgelb

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I would still advise a sleep study. If your body cannot repair itself at night, lots of seemingly strange things can happen.

Radiculopathy-related atrophy can certainly affect more than one area. One way to narrow the possibilities is to undertake physiotherapy to see if you can build muscle back. Perhaps your doctor suggested as much.

But as Nikki and your neurologist have noted, there is no reason to suspect ALS.
 
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