sgx.saint
New member
- Joined
- Dec 23, 2007
- Messages
- 4
- Reason
- Learn about ALS
- Country
- UK
- State
- Teesside
- City
- Teesside
Hello All.
Before I start ranting on about my situation and symptoms, I just wanted to say to everyone here that is suffering from MND that you have my upmost respect, and I am in complete awr of your bravery and I think you demonstrate all that is good about being human. In times of ones own suffering, you are here to help others.
Anyway, I come here, looking for answers, and like many perhaps I am jumping the gun by immediately thinking I have ALS/MND. However, I think we're all guilty of worrying about it whether the end DX was ALS or something different.
General Symptoms
Tremor – Hands, Arms, Legs, Neck/Head
Suffered with tremor, specifically in my hands, since around the age of 14. Past couple of years, albeit still very mild, tremor now apparent in my neck/head and legs, diagnosed with essential tremor.
Myoclonus/Muscle Jerks/Involuntary Movements
Suffered for the past year with involuntary muscle movements, where a part of my body will move of its own accord, very quickly, usually lasting less than a second, then returning to normal. The body part will normally only move very slightly, i.e. no more than a few millimetres.
85% of the time the ‘jerks’ are predominantly in the legs. The remaining jerks are usually limited to the arms and hands, with a very rare occasional neck jerk.
These involuntary movements or jerks happen only when at rest, i.e. sitting, standing still, laying down.
Muscle Fasciculations
The past month I have suffered from many muscle fasciculations, which appear all over my body, but are usually more apparent in my legs and arms. Although I have also had them on my upper back, thigh and abdomen. As far as I can tell these fasciculations subside when I move the effected body part, however this is not 100% certain.
Muscle Pains
The past month I have also suffered from random muscle pains, which can affect any part of my body. They are again primarily affecting my legs but as mentioned, I can get them anywhere. They can only be described as ‘growing pains’ and are often either a dull radiating ache, or a more sharp pain. The latter type being the more predominant pain.
Muscle Stiffness
I have also had a little muscle stiffness, predominantly in the legs, however some stiffness also in the arms. This again is very very mild, and could possibly be a phantom symptom.
Neck/Throat Ache/Pain
The past two days, my neck has randomly been aching, the type of ache you get when you have been talking for far too long. I can speak and swallow fine at this stage and there are no other problems in this area. Although this pain has now gone, and not re-occured.
Muscle Weakness/Weird Sensation
Within the past 48 hours, my arm/hand has felt weak, but it’s a weird sensation, it feels weak even when I am not using it. Like a tingly weak, and its not always present. Yesterday it felt fine all day until the night time when it all of a sudden felt tingly weak. Also, I don’t think my muscles are actually weak, they just feel weak. It’s a really weird feeling. Sometimes I almost think I am imagining it, then other times I realise its actually there.
Well, thats my current symptoms, just wondering if anyone can relate to them, obviously I am hoping you can't lol, which may give me some comfort at this stage.
One other thing, my friend who is a Healthcare Practioner, conducted the Plantar Reflex and Hoffmans Sign test. Both were negative, and I reacted normally on both.
I am awaiting an appointment with my GP and hopefully a referal back to a neurologist.
Before I start ranting on about my situation and symptoms, I just wanted to say to everyone here that is suffering from MND that you have my upmost respect, and I am in complete awr of your bravery and I think you demonstrate all that is good about being human. In times of ones own suffering, you are here to help others.
Anyway, I come here, looking for answers, and like many perhaps I am jumping the gun by immediately thinking I have ALS/MND. However, I think we're all guilty of worrying about it whether the end DX was ALS or something different.
General Symptoms
Tremor – Hands, Arms, Legs, Neck/Head
Suffered with tremor, specifically in my hands, since around the age of 14. Past couple of years, albeit still very mild, tremor now apparent in my neck/head and legs, diagnosed with essential tremor.
Myoclonus/Muscle Jerks/Involuntary Movements
Suffered for the past year with involuntary muscle movements, where a part of my body will move of its own accord, very quickly, usually lasting less than a second, then returning to normal. The body part will normally only move very slightly, i.e. no more than a few millimetres.
85% of the time the ‘jerks’ are predominantly in the legs. The remaining jerks are usually limited to the arms and hands, with a very rare occasional neck jerk.
These involuntary movements or jerks happen only when at rest, i.e. sitting, standing still, laying down.
Muscle Fasciculations
The past month I have suffered from many muscle fasciculations, which appear all over my body, but are usually more apparent in my legs and arms. Although I have also had them on my upper back, thigh and abdomen. As far as I can tell these fasciculations subside when I move the effected body part, however this is not 100% certain.
Muscle Pains
The past month I have also suffered from random muscle pains, which can affect any part of my body. They are again primarily affecting my legs but as mentioned, I can get them anywhere. They can only be described as ‘growing pains’ and are often either a dull radiating ache, or a more sharp pain. The latter type being the more predominant pain.
Muscle Stiffness
I have also had a little muscle stiffness, predominantly in the legs, however some stiffness also in the arms. This again is very very mild, and could possibly be a phantom symptom.
Neck/Throat Ache/Pain
The past two days, my neck has randomly been aching, the type of ache you get when you have been talking for far too long. I can speak and swallow fine at this stage and there are no other problems in this area. Although this pain has now gone, and not re-occured.
Muscle Weakness/Weird Sensation
Within the past 48 hours, my arm/hand has felt weak, but it’s a weird sensation, it feels weak even when I am not using it. Like a tingly weak, and its not always present. Yesterday it felt fine all day until the night time when it all of a sudden felt tingly weak. Also, I don’t think my muscles are actually weak, they just feel weak. It’s a really weird feeling. Sometimes I almost think I am imagining it, then other times I realise its actually there.
Well, thats my current symptoms, just wondering if anyone can relate to them, obviously I am hoping you can't lol, which may give me some comfort at this stage.
One other thing, my friend who is a Healthcare Practioner, conducted the Plantar Reflex and Hoffmans Sign test. Both were negative, and I reacted normally on both.
I am awaiting an appointment with my GP and hopefully a referal back to a neurologist.