Tj1974
New member
- Joined
- Feb 5, 2020
- Messages
- 7
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- NE
- City
- NE
Hello, thank you for this forum and your thoughts about my situation. I pray there is a therapy for this awful illness soon for all effected by it.
Sorr for the long post. I’m a 45 y/o male. Over the past 2 years I have noticed my running pace was slower in general with the same level of effort. Also, from time to time I would get a little dizzy while cycling or running at a distance pace. Last April, I noticed my legs felt hollow when running. I thought I was over training even though I was doing consistent workouts. I stopped running and biking shortly afterwards.
Then in June19, I noticed my legs felt heavy (like I worked out too much) just going down the steps in the morning when I got up. But they were still fine throughout the day.
Also, in June 19 I first noticed being short of breath. At first it was just a slight need to catch my breath while sitting at my desk at work. I would wake up feeling normal then find myself short of breath during the day. In Aug I saw my GP who gave me acid reflux meds to try that didn’t work. The shortness of breath continued an increased in severity.
My GP then did a chest X ray which was normal. Also had a chest ct that was normal. I was refereed to a pulmonologist who did a lung function test that showed everything was normal. At the same time I saw a cardio specialist who performed a stress test that was also normal.
In October, I began to notice twitching on my left arm and got moderate shoulder pain on both sides. The twitching was also felt in my abdominal muscles. Now the twitching is though out my body and most noticeable at night.
My legs continue to feel weaker and weaker. I feel them shake when I walk down the steps. Also they feel tired and hollow now all the time sitting or walking. At night my arms and legs ache as if they have been overused or overworked.
My GP sent me to a nueologist in Dec physical exam was normal he performed an EMG and a nerve test on my right arm and legs Jan. I got the results a few week ago, all was normal. He sent me for a head and back MRI which were also normal. Th neurologist didn’t make an diagnosis, but said it wasn’t “anything bad”. He also told me I could seek a second opinion with another neurologist, which I found strange since this was only our second meeting.
Since seeing the neurologist I have developed tinnitus in my right ear that is nearly constant. My legs and breathing and twitching are the same or little worse.
Not sure what to do next. Does this sound worrisome for ALS? Should I get another opinion?
Thanks for your help and God bless.
Sorr for the long post. I’m a 45 y/o male. Over the past 2 years I have noticed my running pace was slower in general with the same level of effort. Also, from time to time I would get a little dizzy while cycling or running at a distance pace. Last April, I noticed my legs felt hollow when running. I thought I was over training even though I was doing consistent workouts. I stopped running and biking shortly afterwards.
Then in June19, I noticed my legs felt heavy (like I worked out too much) just going down the steps in the morning when I got up. But they were still fine throughout the day.
Also, in June 19 I first noticed being short of breath. At first it was just a slight need to catch my breath while sitting at my desk at work. I would wake up feeling normal then find myself short of breath during the day. In Aug I saw my GP who gave me acid reflux meds to try that didn’t work. The shortness of breath continued an increased in severity.
My GP then did a chest X ray which was normal. Also had a chest ct that was normal. I was refereed to a pulmonologist who did a lung function test that showed everything was normal. At the same time I saw a cardio specialist who performed a stress test that was also normal.
In October, I began to notice twitching on my left arm and got moderate shoulder pain on both sides. The twitching was also felt in my abdominal muscles. Now the twitching is though out my body and most noticeable at night.
My legs continue to feel weaker and weaker. I feel them shake when I walk down the steps. Also they feel tired and hollow now all the time sitting or walking. At night my arms and legs ache as if they have been overused or overworked.
My GP sent me to a nueologist in Dec physical exam was normal he performed an EMG and a nerve test on my right arm and legs Jan. I got the results a few week ago, all was normal. He sent me for a head and back MRI which were also normal. Th neurologist didn’t make an diagnosis, but said it wasn’t “anything bad”. He also told me I could seek a second opinion with another neurologist, which I found strange since this was only our second meeting.
Since seeing the neurologist I have developed tinnitus in my right ear that is nearly constant. My legs and breathing and twitching are the same or little worse.
Not sure what to do next. Does this sound worrisome for ALS? Should I get another opinion?
Thanks for your help and God bless.