Ironman23
New member
- Joined
- Mar 19, 2019
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- CA
- State
- ON
- City
- Toronto
It's been sometime but I am back because of worsening symptoms and no answers.
It's been about a year since my symptoms started.
Fasciculations that started in my leg have now spread throughout my body. They happen all the time, some days are worse than others.
When I stretch I can feel certain muscles spasm. When holding a fork my hand cramps. My hands always cramp. When I chew my jaw feels fatigued. My legs hurt all the time and the pain gets worse when I stand. Sitting has become difficult. My middle back is constantly stiff and uncomfortable around my shoulder blades. My right shoulder is stiff and painful.
Medications give me no relief.
I have been taking high doses of antibiotics since May. My doctor thinks it's Lyme disease but I have not improved only worsening.
I have seen a neurologist 8 months ago and I had no clinical findings.
Now my doctor wants to put me on a picc line.
Finding an answer is frustrating but I am hopeful.
It's been about a year since my symptoms started.
Fasciculations that started in my leg have now spread throughout my body. They happen all the time, some days are worse than others.
When I stretch I can feel certain muscles spasm. When holding a fork my hand cramps. My hands always cramp. When I chew my jaw feels fatigued. My legs hurt all the time and the pain gets worse when I stand. Sitting has become difficult. My middle back is constantly stiff and uncomfortable around my shoulder blades. My right shoulder is stiff and painful.
Medications give me no relief.
I have been taking high doses of antibiotics since May. My doctor thinks it's Lyme disease but I have not improved only worsening.
I have seen a neurologist 8 months ago and I had no clinical findings.
Now my doctor wants to put me on a picc line.
Finding an answer is frustrating but I am hopeful.