Kcombs
New member
- Joined
- Nov 15, 2011
- Messages
- 5
- Reason
- Learn about ALS
- Country
- US
- State
- Indiana
- City
- South bend
Hello everyone just wanted to start off by saying how impressed I am with the level of knowledge and caring on this site. I have been serching for answers for a year and have been serching here. It has been over one year of Dr's and no answer to my muscle wasting. All the wasting/atrophy I have had has all been symetrical throughout my body. I'm 40 yrs old and have high cholesterol so and have been on Lipitor for 7 yrs. My Dr took me off this drug to see if this was the problem but symtoms have continued. I work out 4-5 times a week and I am very in tune with my body and I can see the muscle wasting away right in front of me. The wasting first was noticed in my calves, hands, and forearms in Oct of 2010. Went to local nero in Jan 2011 passed all the manual test and he dismised any nerve problem. Muscle contiued to waste and now noticed in hips, trunk and butt. Still concerned so I went to nero at Cleveland Clinic in March. Again passed all the manual testing, but I can still see the muscles wasting. Ran a series of blood test as well that came back fine, can't find a problem. Summer came and now wasting in chest, quads, face, neck and shoulders. Went back to Cleveland Clinic in June 2011, had a EMG/NCV passed 12/12 on all but one which was 11/12. So Dr dismised as all clear. It's now November and my wife can see the loss of muscle throughout my body. My strength is good and I can workout fine with the same weight I have used for the last 5 yrs. I have lost 2 inches off my arms, 3-4 inches of my legs, chest and shoulders. My muscles are not as hard and when I flex they dont get solid like they used to. Can ALS work like this? Just pure atrophy first with no other signs of nerve damage? I really am at a loss and can't seem to get anywhere with the Doctors/Specialist, and I am really frustrated. I can see somethings wrong and can't get an answer. Thanks in advance for any advice you can share.