One down, 49 to go.

[CGARS]

One year ago I got the news no one wants to hear. "I'm sorry Sir, but ALS is at the top of my list"
This is what my Neuro told my wife and I. I turned every shade of green, my knees buckled, and I tried to hold back throwing up while beads of sweat ran down my face.

All I could say was "But, I'm only 40!"

40 or not, it was happening. Shortly after that, my official diagnosis came from the ALS Centre.

All I could think of is why me, why this curse?

Well, a lot has happened this past year for me. I realize it's not the end of the world.

I see things differently now.
I love unconditionally.

I want to share something I wrote after my diagnosis that helped me(and still gets me through every day)

Every day you wake up is a good day,
Every day you can sit up and put your feet on the ground is a great day,
Every day you can walk to the kitchen, make a coffee and feed the kids is an incredible day,
Every day you can tell your wife and loved ones how much they mean to you is a perfect day.
Everyday is a gift, a miracle.
I for one will never forget what each and every day means to me.


I thank my Forum family for helping me get through my first year.

Cheers,
Casey

 

[Toto's Dorothy]

Casey,

That was wonderful. It is amazing how perspectives change when facing als.

Thank you.

PS One more post and you won't be a repeat newbie.

 

[WellsRuby]

A wonderful post that made my day. I will print what you wrote and read it everyday. Thank you for sharing

 

[tomby]

thanks casey!

 

[CathyP]

I realize it's not the end of the world.
I see things differently now.
I love unconditionally.
Casey

I agree with you 100%!

Cathy

 

[panguinjen]

Way cool Casey! Our one year anniversary is Friday!

Jen

 

[momap53]

Congrats on making it through your first year with your awesome attitude still intact!

Any many, many thanks for sharing it with all of us!

 

[vzandt]

You are so right.

 

[Compass Rose]

Casey, what a wonderful, inspirational post! Thank you for sharing your thoughts.

 

[Susan10]

awesome attitude! my 1 yr is coming up soon. you gave me a good perspective.

 

[ottawa girl]

Hey Casey,


THANK YOU.

Your PSALM of thanksgiving is divinely pure, lyrical and magical

 

[jamiem]

Oh, Casey, thank you for such raw honesty. One year - I am on my way, I hope. I think of you often and wish you a big cure.

 

[ltbeauti]

Yes. Congrats to you. Keep hangin around. You have a lot of good to share !

 

[scotslassie]

Brilliant post. Thank you for that. x

 

[Floyd Parton]

Love you my als brother