Hello again to all. First post in newly diagnosed ex ‘Early Stages.’ 12-28 was dirty EMG ‘you have MND. Go wait in main waiting room while i type up report. Good luck.’ 12-29 was official ‘you have als’ diagnosis from main neurologist.
I have a follow-up slated for 1-11-22 at
ColumbiaDoctors clinic Tarrytown, NY. I guess there was certainty in my diagnosis so cutting to chase, going to clinic. Or is that where the 2nd diagnosis occurs and/or where i can learn if i am Sporadic or Familial ALS?
I am in a fog. 53 yes old! Had so much living to do. Graduations, weddings, grandchildren, retirement biking/hiking/skiing/tennis. Four fabulous kids, 25, 22, 20, 16, wonderful wife. Pretty lucky guy.
How did this happen to me? Was i concussed playing sports? I had a bad fall two years ago and amazingly didn’t break any bones but was very shaken up. Did that trigger something? I suppose i will get information on 11th, but i am not as strong as the beautiful, amazing people here. That is for sure. I cannot and will not put my loved ones, particularly my wife, through the pain of watching me slowly die. They have their own lives to live. I have already started writing a diary and letters to my children and wife. That at least has given me a distraction these last six mind numbing days. Telling kids on 9th. Please God, give me strength to do that. Ty for listening and imparting wisdom, guidance, understanding. Srry if some of this repeats from ‘Early Stages.’
I have a follow-up slated for 1-11-22 at
ColumbiaDoctors clinic Tarrytown, NY. I guess there was certainty in my diagnosis so cutting to chase, going to clinic. Or is that where the 2nd diagnosis occurs and/or where i can learn if i am Sporadic or Familial ALS?
I am in a fog. 53 yes old! Had so much living to do. Graduations, weddings, grandchildren, retirement biking/hiking/skiing/tennis. Four fabulous kids, 25, 22, 20, 16, wonderful wife. Pretty lucky guy.
How did this happen to me? Was i concussed playing sports? I had a bad fall two years ago and amazingly didn’t break any bones but was very shaken up. Did that trigger something? I suppose i will get information on 11th, but i am not as strong as the beautiful, amazing people here. That is for sure. I cannot and will not put my loved ones, particularly my wife, through the pain of watching me slowly die. They have their own lives to live. I have already started writing a diary and letters to my children and wife. That at least has given me a distraction these last six mind numbing days. Telling kids on 9th. Please God, give me strength to do that. Ty for listening and imparting wisdom, guidance, understanding. Srry if some of this repeats from ‘Early Stages.’