Crazycatlady22
New member
- Joined
- Feb 8, 2014
- Messages
- 8
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- US
- State
- TX
- City
- Dallas
Hi Guys,
I am hoping that because its been over a year and I've had a mirad of random symptoms, that it points away from ALS (especially bulbar). I posted back in Feb 2014 with throat and tongue issues (tongue feeling weird, GERD, tight throat, etc.) and I either got used to it or it was simply anxiety because I was able to lead a fairly normal life from May- early March of this year and had some relief from my symptoms.
At the end of March I came out of sedation for an outpatient procedure I was having and felt like my airways had collapsed while being put under and my throat, airway in nose and throat and tongue feel out of place or unnatural. I also noticed I was shallow breathing with my upper chest and neck and having to force myself to take long, deep breaths (i know that is classic anxiety). My husband said my breathing rate was 100% and never dipped below 96% on the monitor when I was recovering from the sedation.
My problems are exacerbated at night when I feel like I wake up after only an hour or two of sleep and my tongue and throat are out of whack, I am upper chest breathing and my swallowing reflex happens subconsiously in my sleep which wakes me up. My husband says I don't snore, but I'm wondering if this could be some sort of sleep apnea? Like my muscles relax too much when I'm asleep? I automatically think neck muscle weakness when I am upset about it. It sort of feels like I have to overtense my throat to make myself feel like i can breathe easier.
Lastly, my swallowing reflex doesnt not feel autonomous anymore when I am awake and I think about every swallow with food or liquid. I haven't out right choked yet, but i feel like the food and liquid take forever to go down and often need additional forceful swallows. My soft palate moves around fine when I say AHH and I can chug water when I tilt my head back and relax my neck, but it just feels like it sits there for a bit before it goes down. I also notice I hiccup alot more after eating and I can hear gurgling after I swallow water in the top of my throat, but I am hoping its because I am just overswallowing and have had gerd in the past?
I have read the sticky and I also know that Gooseberry's husband started with swallowing issues only (I have no issues with my tongue strength or fasics and can talk fine, tent my mouth, wiggle it around, roll my r's etc.) No upper body strength issues either.
Can I please get some reassurance that whatever is going on does NOT sound like bulbar ALS?
I am hoping that because its been over a year and I've had a mirad of random symptoms, that it points away from ALS (especially bulbar). I posted back in Feb 2014 with throat and tongue issues (tongue feeling weird, GERD, tight throat, etc.) and I either got used to it or it was simply anxiety because I was able to lead a fairly normal life from May- early March of this year and had some relief from my symptoms.
At the end of March I came out of sedation for an outpatient procedure I was having and felt like my airways had collapsed while being put under and my throat, airway in nose and throat and tongue feel out of place or unnatural. I also noticed I was shallow breathing with my upper chest and neck and having to force myself to take long, deep breaths (i know that is classic anxiety). My husband said my breathing rate was 100% and never dipped below 96% on the monitor when I was recovering from the sedation.
My problems are exacerbated at night when I feel like I wake up after only an hour or two of sleep and my tongue and throat are out of whack, I am upper chest breathing and my swallowing reflex happens subconsiously in my sleep which wakes me up. My husband says I don't snore, but I'm wondering if this could be some sort of sleep apnea? Like my muscles relax too much when I'm asleep? I automatically think neck muscle weakness when I am upset about it. It sort of feels like I have to overtense my throat to make myself feel like i can breathe easier.
Lastly, my swallowing reflex doesnt not feel autonomous anymore when I am awake and I think about every swallow with food or liquid. I haven't out right choked yet, but i feel like the food and liquid take forever to go down and often need additional forceful swallows. My soft palate moves around fine when I say AHH and I can chug water when I tilt my head back and relax my neck, but it just feels like it sits there for a bit before it goes down. I also notice I hiccup alot more after eating and I can hear gurgling after I swallow water in the top of my throat, but I am hoping its because I am just overswallowing and have had gerd in the past?
I have read the sticky and I also know that Gooseberry's husband started with swallowing issues only (I have no issues with my tongue strength or fasics and can talk fine, tent my mouth, wiggle it around, roll my r's etc.) No upper body strength issues either.
Can I please get some reassurance that whatever is going on does NOT sound like bulbar ALS?