silas19
New member
- Joined
- Mar 23, 2016
- Messages
- 5
- Reason
- PALS
- Diagnosis
- 01/2016
- Country
- US
- State
- Virginia
- City
- McLean
I am a 64 year old male and I was diagnosed with ALS in January 2016. My primary symptoms have been a progressive weakness in my arms. While the EMG says the legs are also weakening, I do not yet feel that. I also at present do not have any "upper motor neuron" symptoms.
I have tried to get into some clinical trials but the fact that I do not have upper motor neuron symptoms has excluded me from every one that I explored. So for the time being, I am trying to eat well, take vitamin supplements, exercise to the extent I can, and get assistive devices like a chair in the shower and a "spinner" for the steering wheel in my car.
I have also looked into stem cell therapy, but I get the sense that it is still very early in the game when it comes to stem cell therapy for ALS. If anyone knows differently, I would love to know!
Other than that, I just try to stay in the present and get through each day. Any words of wisdom from other forum members would be welcome. Thanks!
I have tried to get into some clinical trials but the fact that I do not have upper motor neuron symptoms has excluded me from every one that I explored. So for the time being, I am trying to eat well, take vitamin supplements, exercise to the extent I can, and get assistive devices like a chair in the shower and a "spinner" for the steering wheel in my car.
I have also looked into stem cell therapy, but I get the sense that it is still very early in the game when it comes to stem cell therapy for ALS. If anyone knows differently, I would love to know!
Other than that, I just try to stay in the present and get through each day. Any words of wisdom from other forum members would be welcome. Thanks!