MarieOC
New member
- Joined
- Dec 27, 2008
- Messages
- 5
- Reason
- CALS
- Diagnosis
- 12/2008
- Country
- US
- State
- NJ
- City
- Oaklyn
Hi!
My other half was recently diagnosed with ALS. He has already lost complete function in his left arm to the shoulder. Due to my own medical problems I am unable to go to his Dr appointments with him. I tell him to ask the questions I want answers to; but I suspect he is too scared to hear the answers. So, I come to you for information in a general way. I realize that ALS doesn't progress in any 2 people in the same manner; I'm just looking for a vague idea of what I am in for. FYI: He is 49 yrs old, general good health besides ALS & moderately overweight.
Can I expect the right arm to degenerate at the same speed as his left did?
Will exercising his lungs stave off the weakness his Dr predicts; even if for a short time?
Shouldn't he be walking (as long as he feels strong enough)? His family has turned into a limo service for him. It seems to me, lying about all the time can't be good for him. They won't even let him walk to the corner store!
Anyone have any helpful links to sites where I could get info on medical devices for rent or loan? ie. hospital bed, wheel chair, etc.
I know I could google this info myself; but I think I would rather hear from people with actual experience rather than gamble on getting good information.
Any advice would be greatly appreciated & I thank you in advance.
~Marie~
My other half was recently diagnosed with ALS. He has already lost complete function in his left arm to the shoulder. Due to my own medical problems I am unable to go to his Dr appointments with him. I tell him to ask the questions I want answers to; but I suspect he is too scared to hear the answers. So, I come to you for information in a general way. I realize that ALS doesn't progress in any 2 people in the same manner; I'm just looking for a vague idea of what I am in for. FYI: He is 49 yrs old, general good health besides ALS & moderately overweight.
Can I expect the right arm to degenerate at the same speed as his left did?
Will exercising his lungs stave off the weakness his Dr predicts; even if for a short time?
Shouldn't he be walking (as long as he feels strong enough)? His family has turned into a limo service for him. It seems to me, lying about all the time can't be good for him. They won't even let him walk to the corner store!
Anyone have any helpful links to sites where I could get info on medical devices for rent or loan? ie. hospital bed, wheel chair, etc.
I know I could google this info myself; but I think I would rather hear from people with actual experience rather than gamble on getting good information.
Any advice would be greatly appreciated & I thank you in advance.
~Marie~