KevinM
Senior member
- Joined
- Mar 30, 2019
- Messages
- 559
- Reason
- PALS
- Diagnosis
- 06/2019
- Country
- US
- State
- FL
- City
- Tallahassee
Damn, Kim, now that’s a regimen if I ever saw one! I’m screwed because I won’t give up my 2-3 beers a day and occasional cigar! Oh well.
Seriously, though, I continue to marvel at your apparently very slow progression, especially for limb onset LMN dominant. I know we are all snowflakes, but a part of me holds out hope for a similar course. Of course I could never be as disciplined as you with your supplements and diet, but I’ve gotten some great tips on supplements that I will try to incorporate. Tudca might be a real problem, though, with my GI issues
From this and previous posts, it sounds like you are still pretty much fully functional (albeit slower and with lots of pain from ALS and your other pathologies). However, it sounds like you can handle all basic activities without assistance. How would you score yourself on the FRS? If this is too personal a questions, please let me know. Keep it up, my friend. Best, Kevin
Seriously, though, I continue to marvel at your apparently very slow progression, especially for limb onset LMN dominant. I know we are all snowflakes, but a part of me holds out hope for a similar course. Of course I could never be as disciplined as you with your supplements and diet, but I’ve gotten some great tips on supplements that I will try to incorporate. Tudca might be a real problem, though, with my GI issues
From this and previous posts, it sounds like you are still pretty much fully functional (albeit slower and with lots of pain from ALS and your other pathologies). However, it sounds like you can handle all basic activities without assistance. How would you score yourself on the FRS? If this is too personal a questions, please let me know. Keep it up, my friend. Best, Kevin