myooshka
Active member
- Joined
- Aug 4, 2007
- Messages
- 97
- Country
- CA
- State
- alberta
- City
- Sylvan Lake
Just wondering if these are things people with als have and I've noticed since I got sick one year ago. Besides the atrophy everything pops and snaps when I move, my nails are ridged and have a purpleish tinge in the moons. In my feet and hands where I have the most atrophy the skin on my palms and bottoms of my feet is very thin and more red than normal. If this is not ALS is is something serious I am a normally active 31 year old I don't drive, cook, clean my house, do yardwork because my muscles tire too fast then for sure I have no energy for my three month old son Jacob. It has already been one year since this started and I am pretty much just starting out with regards to getting an answer. I had a really shitty gp just thinks everything was either stress or pregnancy. I lost both my parents and there is a history of biploar in my family which I don't have but on paper it would be easy to explain it away, only now with this horrible atrophy in my hands they can't ignore anymore. The first neuro I saw I told her about the fatigue and the wierd fluttering feeling in my leg she found eight beats of clonus but said it's just cause I'm young and anxious. Sent to neuro #2 finds clonus very brisk reflexes-normal mri and nerve conduction tests tells my with a clean mri there is nothing because it would show up. Third neuro sees in my file parents recently passed away so tells me it's fibromyalgia realted to stress. Neuro#4 Comments on how brisk my reflxes are blames my weakness on depression. This is when I was in hospital after birth of my son. A physiotherapist is sent to see me and tells my my muscle tone is not normal, my hands are atrophied and if I don't get an answer at this hospital than keep searching for one. How can a trained neuro who is supposed to be the best overlook this but a physio can see it. Neuro #5 By this point I have major atrophy in hands, this is the best one I've heard yet. When I showed him my hands and my arms which have no muscle tone he tells me the reason is because of pregnancy hormone. Then he says yes your hands are really flat and small but tells me I just have hands that look like a child's and of course he see's in my file that there is a family history of bipolar so says even though I don't have bi-polar, I seem to be an intelligent girl with a good head on my shoulders he wants to refer my to a psychiatrist who deals with peole who have my problem.AAAAAAAAAhhhhhhh. I can't believe it here I am my life has changed so drastically, I am so scared for my son and my family, my husband has to do pretty much everything around the house and they are telling me it is in my head. I have already started to write letters to my son and my husbands and I have talked about what he would do if i wasn't here anymore. Everone knows there body and when you have never been sick, I didn't even get colds you know when you are in trouble. You feel it in your body, you feel it in your heart. One week after seeing this last neuro my neighbour takes me to her dr. he didn't check anything but took one look at my hands which are curling and referred me to the head of neurology in Calgary. He told my dr's get used to thinking in the box and if something doesn't fit what they are used to seeing they blame it on psychiatric reasons. He said he does not see anxiety, depression, see's a scared young mom. What a relief someone believes me. This is where I've gotten after one year. There was an episode of seinfeld where elaines tries to get ahold of her medical file because one physician says one thing about her and the rest go along with it, this is what happened to me. Started out cause the death of my parents added with the bipolar my mom had. Then when I was sad because I can't do so much anymore and am pregnant then all of it is blamed on depression. You name it I went through two psych tests, one showing completely normal and the second which showed I had situational depression and was scared for my future which is normal for a very sick person. I had never had any mental problems and no physical problems but somehow I got completely railroaded when I needed help. I can't believe it when I think about it, it makes my so angry. Believe my everyone thinks we have such a great medical system in canada I beg to differ. Has anyone else gone through anything like this? Sorry for the rant feels good to get it out. Mya