- Joined
- Jul 29, 2017
- Messages
- 3,933
- Reason
- PALS
- Diagnosis
- 07/2017
- Country
- US
- State
- OR
- City
- Southern Oregon
Cherise,
Is your dad age 60 or younger? If over 60, he wouldn’t qualify for the study.
In terms of whether it’s worth going off Radicava to qualify for the NurOwn trial, that’s an individual decision. There is a good long thread in the general forum concerning people’s experiences with Radicava.
The NurOwn is not available in Israel. That was only for a phase 2 trial, which has been completed. The treatment has not been released yet. That may or may not occur depending on the results of the current phase 3 trial. Jethro from Croatia looked into trying to get it from Israel and was told that’s not available.
Is your dad age 60 or younger? If over 60, he wouldn’t qualify for the study.
In terms of whether it’s worth going off Radicava to qualify for the NurOwn trial, that’s an individual decision. There is a good long thread in the general forum concerning people’s experiences with Radicava.
The NurOwn is not available in Israel. That was only for a phase 2 trial, which has been completed. The treatment has not been released yet. That may or may not occur depending on the results of the current phase 3 trial. Jethro from Croatia looked into trying to get it from Israel and was told that’s not available.