@oyo&ted
thanks for advices and reviewing all the things from your point of view.
@oyo i tried to reach someone in israel, but all waves lead to mary kay turner which is brainstorm's membrane, or we didn't understand eachother. i tried to apply
for treatment 1. in israel in october, and they told me to contact them in 3 months. nobody answers. they treat me like table tennis ball. after that, i tried to apply for
2. treatment in usa, but i'm not eligible, 'cause i'm not canada&usa citizen. all waves lead to brainstorm: i'm not eligible, or there's no trial in israel.
ok, there's no trial in israel, i'm not eligible, but if there's treatment on saturn, i'll pay for it!!!! i don't expect mercy&compassionate treatment, i wanna pay, i want to give you money for service,
i have dollars, euros, shekels, whatever. i have money... i want to eliminate damned 50% of lost time with money - possibility to be in placebo group!
ok, i can't say it in hebrew, but i think that my english is clear enough.
please, give me advise: is there any kind of treatment in israel with nurown (which hospital, who's in charge?), not "just stem cells". disclaimer&others included.
@oyo, you said "it is in treatment phase in israel". where? petach tikvach? MKT said thet there's (just) possibility for hospital exemption to take compassionate patients for fee, but they don't know
when. no time table, no info... i dont want to be compassionate patient, i don't want to wait and lose time to spare some money. my ALS is riding and it takes my power every day.
dont want to save money/sell my life&health. if i dont spend my money on myself, my successor will spend it on a waiter's tips, cars, wardrobe... thinking that (my) money and rain felt from a same cloud.
i have no family. just daughter and my ex wife. i don't count on her lovers and his children. i live alone. still walk, work, no help tools, still have (enough) power to make something for myself, but as ALS
progresses, poisoning by lead (bullet) is all remains in a (hope) year or so.
@ted you have same sence for humor as i have. same way of thinking...
i had enough time since i am diagnosed to read part of ncbi refer to als, patientslikeme, alsuntangled, forums worldwide etc., so i think i learned something about ALS.
i talked to many neurologists. they learned everything they wad to and that is not questionable, they were A students, but they are not entusiasts, they don't have als. it is true that they saw many
people with als, but every patient is clinicaly specific. biochemists, pharmacologists, neurologists... all they try to invent cure/drug/pill against ALS. typically. "every disease should be cured
by pill/drug, so let's donate for investigation!"
that's not way out.
there's no cure for als and never ever will be. it is reaction. it is state of organism. there's malfunction in BBB (blod-brain barriere), semipermeable lipoprotein cell membrane is damaged and neurons die from the inside cause they are poisoned.
hence, motor neurons are affected by toxins caused by oxidative stress who enter through membrane. neuron dies - muscle atrophy.
it is not possible to patch leakage BBB easy, by drugs.
antioxidans do the job, but not completely. edaravone is a superantioxidans, just like big watermelon full of antioxidans. glutamate is (just) one of the poisons. riluzole block it's releasing, but is just one grain.
this is not plumber's work. nothing is effective as nature is. i am not religious, i saw bible just on internet, i look like hillbilly, you would bet that i have problems in reading and writing
since elementary school, but i think that my opinion is established.
stem cells are most powerfull weapon against als by now. it doesnt heal (wont use word "cure") cause of als, but it "repairs" consequence. i think that healing is possible if organism didnt deteriorate too much. nelda buss is someone i can not explain.
if it is such a dammaged, nothing can help. best thing what can happen is plateau. plateau may occur at any level.
many "clinics", "specialists", "wannabe experts" are playing game with unprocessed stem cells. result is death, tissue dammage etc...
stem cells are mighty weapon, but you should know how to use it. if nurown will not heal als, it can slow it down significally at least. rest of problem i am leaving to myself, supercompensation...
brainstorm is inc on nasdaq. they are experts, but also traders. they have in pipeline preclinical progresive MS and autism...
)) do you believe that? i don't. it is direction of their stock price. nurown is
a different thing. promisse less, do more.
i have just one report from III trial. i'd like to see someone who was on treatment in israel.
have no family, i have money which i dont need, i'm modest, stil mighty enough. by last year i could move a mountain, so i can not imagine myself in electric wheelchair. that is me. can't help myself. if i kill my hope, i made a suicide.