NurOwn starts today!

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jethro

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Joined
Nov 2, 2017
Messages
373
Reason
PALS
Diagnosis
09/2017
Country
HR
State
Croatia
City
ZAGREB
everything is ready, as far as i know, there should be 3 treatments, every 6 months. placebo and real drug. after 1. there will be difference, after second injection, difference should be visible well, after 3. (1,5yrs). everything will be clear. anybody has idea how much will treatment cost if nurown gets approval?
i saw somewhere speculations:
100000 usd/year nurown. how often it should be applied?
stock price: 15 USD, now is app 3,3 usd (take money on stock market and pay yourself treatment) :)

same sorce says that edaravone costs 140000 usd/year, but 2 months dose cost 2500 USD if you buy from korea or japan.

riluzole had a price for 1 year 50000 USD when put on market, 22 years ago!!!

nurown is proprietary treatment, not like are current clinics in china, thailand, europe etc... these clinics cost app 15-20000 USD (3 days), china is 40000 USD/12 days. obviously, ALS patients seem to be easy target to take money from.
 
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rknt50a

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Joined
Aug 14, 2006
Messages
214
Reason
Lost a loved one
Diagnosis
09/1996
Country
US
State
IN
City
IN
riluzole had a price for 1 year 50000 USD when put on market, 22 years ago!!!

That was not our experience (in the US) with Rilutek 21 years ago.

The full out-of-pocket expense if insurance would not cover was around $1500 per month iirc.

Rhone Poulenc was helpful with establishing insurance coverage and they had a generous patient assistance program for self-pay patients who needed assistance.

It wasn't cheap, but our experience was that anyone who wanted it could get it.
 
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