PrimaVera
New member
- Joined
- Apr 23, 2020
- Messages
- 9
- Reason
- PALS
- Diagnosis
- 03/2020
- Country
- US
- State
- CT
- City
- Shelton
Newly diagnosed w/ Bulbar ALS after months of worsening swallowing changes, then rapid speech changes over last 6 months. I just started Neudexta 10 days ago and am very hopeful. I have severely slurred, slow, effortful speech, trouble chewing, poor lip seal, trouble swallowing, choking on liquids, felt like things were getting stuck in my throat, and pills were very difficult to swallow, and had a terrible time moving food around in my mouth. I am thrilled to be able to peel food off the roof of my mouth again. Swallowing also seems a bit better, and my tongue can form words just a wee bit better.
Haven’t seemed to have any of the concerning possible EKG changes the Med can cause; keeping my fingers crossed.
Haven’t seemed to have any of the concerning possible EKG changes the Med can cause; keeping my fingers crossed.