Nuedexta

PrimaVera

New member
Joined
Apr 23, 2020
Messages
4
Reason
PALS
Diagnosis
03/2020
Country
US
State
CT
City
Shelton
Newly diagnosed w/ Bulbar ALS after months of worsening swallowing changes, then rapid speech changes over last 6 months. I just started Neudexta 10 days ago and am very hopeful. I have severely slurred, slow, effortful speech, trouble chewing, poor lip seal, trouble swallowing, choking on liquids, felt like things were getting stuck in my throat, and pills were very difficult to swallow, and had a terrible time moving food around in my mouth. I am thrilled to be able to peel food off the roof of my mouth again. Swallowing also seems a bit better, and my tongue can form words just a wee bit better.

Haven’t seemed to have any of the concerning possible EKG changes the Med can cause; keeping my fingers crossed.
 

lgelb

Forum Supporter
Moderator
Joined
Nov 5, 2009
Messages
8,258
Reason
Lost a loved one
Diagnosis
00/0000
Country
US
State
WA
City
Seattle
Welcome, Prima. I moved your post so more could welcome you here. Usually, PALS will post updates or questions in the General forum or PALS. The CALS section where you originally posted is used by caregivers.

Let us know how we can help. I hope the Nuedexta continues working well for you.

Best,
Laurie
 

Tkthiede

Active member
Joined
Feb 25, 2019
Messages
49
Reason
PALS
Diagnosis
01/2019
Country
US
State
WY
City
Cheyenne
I’m sorry for you diagnosis, Prima, but I’m glad your Nuedexta is helping. Welcome to this group. The members are very helpful. They give great advice and encouragement.
Tammy
 

ARCG

Distinguished member
Joined
Oct 12, 2016
Messages
147
Reason
CALS
Diagnosis
1/2015
Country
US
State
TX
City
Houston
I am sorry about your diagnosis, but this is a good place to find help and support. My pals also takes neudexta and we believe it has helped with his bulbar symptoms. A nurse told us if you tip your head a little forward when you take pills, it helps to swallow. It seems counter-intuitive but it does help my pals.
 

Jhettinger

Forum Supporter
Distinguished member
Joined
Sep 22, 2016
Messages
102
Reason
PALS
Diagnosis
4/2016
Country
US
State
GA
City
Roswell
I went to a smoothie to take pills everyday. frozen fruit if fresh not available.
 
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