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Note of passing

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Weltschmerz

Active member
Joined
Apr 14, 2019
Messages
57
Reason
CALS
Diagnosis
01/2019
Country
UK
State
SC
City
Edinburgh
With sadness, checking in to say my wife passed away on Friday, 5 February. At the stage of losing all eye (eyeball/eyelid) muscle function, a limit had unfortunately been reached. After deciding not to insist on ventilation, the end came somewhat suddenly, in a way. On the other hand, after 2 awful years the final stage involved such peace, calm, and me by her side. I am devastated but grateful for all the support and words of encouragement on this forum in the past 2 years since diagnosis. I hope I can help others and pay forward the advice and suggestions. What a group this is.
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
10,479
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
I am so very sorry for your loss. She was fortunate to have you and glad it was peaceful.
 

Wilson2009

Distinguished member
Joined
May 4, 2017
Messages
242
Reason
PALS
Diagnosis
01/2017
Country
US
State
KS
City
Lenexa
So sorry for your loss. Our deepest sympathy to you and your family.
 

JimInVA

Senior member
Forum Supporter
Joined
May 29, 2014
Messages
945
Reason
Lost a loved one
Diagnosis
04/2014
Country
US
State
VA
City
Poquoson
I'm so very sorry to hear of your wife's passing and the loss you most certainly now feel. Thank you for participating here... and I'm glad you found information that might have made the journey for the two of you a little easier to travel. Though our experiences are with the same ALS/MND diseases, our individual paths are often different. Please know that yours would be a welcome voice in the sharing of your experiences for those still on this journey.

My best...

Jim
 

KimT

Extremely helpful member
Forum Supporter
Joined
Nov 18, 2014
Messages
4,148
Reason
PALS
Diagnosis
08/2015
Country
US
State
South
City
The Beach
I'm so sorry for you. Thank you for being such a good CALS.
 

jonico

Distinguished member
Forum Supporter
Joined
Feb 21, 2017
Messages
143
Reason
Lost a loved one
Diagnosis
12/2014
Country
US
State
NY
City
Central
Beautifully said W. So sorry! You were clearly an amazing, compassionate caregiver for your wife. She was fortunate to have you, and I am very sure, you her. Wishing you peace in this next part of the journey...Jon
 

lgelb

Moderator
Forum Supporter
Joined
Nov 5, 2009
Messages
10,109
Reason
Lost a loved one
Diagnosis
00/0000
Country
US
State
WA
City
Seattle
Thank you for letting us know. You were her constant companion under very difficult circumstances, and she was fortunate to have someone so considerate of her ultimate wishes. I hope you and others who loved her find peace and strength.

Best,
Laurie
 

lisa g

Distinguished member
Joined
Apr 17, 2019
Messages
394
Reason
PALS
Diagnosis
04/2019
Country
US
State
FL
City
Fort Pierce
So sorry for your loss. You showed amazing compassion and love. Wishing you peace.
 

Jrzygrl

Senior member
Joined
Feb 14, 2017
Messages
700
Reason
Lost a loved one
Diagnosis
08/2014
Country
US
State
NJ
City
X
So sorry for your loss. Wishing you peace as you move forward.
 

Samkl

Distinguished member
Joined
Nov 1, 2019
Messages
117
Reason
Loved one DX
Diagnosis
08/2019
Country
AU
State
NS
City
Wollongong
I’m so sorry for your loss. Your wife was so fortunate to have such a loving and caring partner. Xx
 

affected

Guru status reached
Joined
Apr 26, 2013
Messages
13,332
Reason
Lost a loved one
Diagnosis
05/2013
Country
OZ
State
AU
City
lala land
I'm so very sorry for your loss. I can only agree, the disease is horrific, but a peaceful passing can be achieved. I hope you find comfort in this 💜
 

blitzc

Distinguished member
Joined
Apr 20, 2018
Messages
444
Reason
PALS
Diagnosis
01/2018
Country
US
State
OH
City
Massillon
My deepest sympathies to you on the passing of your beloved. A caregiver's experience like yours is immeasurable to all those CALS and PALS who grace us with their presence here on this forum. Stay close.
 

Narrowminded

Extremely helpful member
Joined
Apr 30, 2016
Messages
2,688
Reason
Lost a loved one
Diagnosis
07/2007
Country
US
State
PA
City
Pittsburgh
I am so very sorry for your loss. I wish you peace and comfort at you move forward and make sense of what you have just been through.

Hugs
 

Bestfriends14

Very helpful member
Forum Supporter
Joined
May 7, 2017
Messages
1,227
Reason
CALS
Diagnosis
05/2017
Country
CA
State
AB
City
CALGARY
I'm so very sorry. Your wife is now free of this beast, if that is any consolation. Hugs to you.

J
 

vltsra

Senior member
Forum Supporter
Joined
Nov 12, 2015
Messages
535
Reason
CALS
Diagnosis
11/2015
Country
US
State
CA
City
San Diego
Dear Weltschmerz, I'm sorry to hear of your wife's passing. Reading about your story here on the forum I was humbled by your love and commitment. You were a wonderful caregiver. Wishing you peace and comfort going forward.

V
 
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