- Apr 14, 2019
With sadness, checking in to say my wife passed away on Friday, 5 February. At the stage of losing all eye (eyeball/eyelid) muscle function, a limit had unfortunately been reached. After deciding not to insist on ventilation, the end came somewhat suddenly, in a way. On the other hand, after 2 awful years the final stage involved such peace, calm, and me by her side. I am devastated but grateful for all the support and words of encouragement on this forum in the past 2 years since diagnosis. I hope I can help others and pay forward the advice and suggestions. What a group this is.