Hi Darryl,
I think most people can relate to your fears. Most folks can put off consideration of death for some indefinite time in the future - we simply want to ignore the inevitable fact of our own deaths. We intellectually acknowledge our eventual deaths, but emotionally and practically we are in denial of it. But receiving a diagnosis of ALS or some other terminal disease disabuses us of the notion that we can ignore it. In truth, being jolted out of our denial of it, having our willful neglect of consideration of it slapped out our hands, so to speak, can be a great blessing.
So where does one turn for answers, insight, comfort, consolation, hope, joy, and confidence in the inevitable prospect of our own deaths and those of the ones that we love and cherish?
My earnest recommendation is that you spend every possible minute reading the New Testament of the Bible. But read it with a genuine heart to know the truth with an eager willingness to embrace the truth as God reveals it to you. One of the verses you will read there is Romans 10:17 " So faith comes from hearing, and hearing by the word of Christ." You will find your faith increasing as you immerse yourself in the Word of God with a heart open to the truth.
It is Jesus Himself that tells us "Ask, and it will be given to you; seek, and you will find; knock, and it will be opened to you. For everyone who asks receives, and he who seeks finds, and to him who knocks it will be opened." (Matthew 7:7-8) So if we approach Him in His Word with an honest heart to know the truth and seek it from Him, He will give it - abundantly.
You will find much assurance in the Scriptures that this life we know here is so small and paltry compared to the eternity He has prepared for those who love Him. As He tells us in 1 Corinthians 2:9 "but just as it is written,“Things which eye has not seen and ear has not heard,
And which have not entered the heart of man,
All that God has prepared for those who love Him.”
And Romans 8:18 "For I consider that the sufferings of this present time are not worthy to be compared with the glory that is to be revealed to us."
And these verses from 2 Corinthians Chapter 5:
For we know that if the earthly tent which is our house is torn down, we have a building from God, a house not made with hands, eternal in the heavens. 2 For indeed in this house we groan, longing to be clothed with our dwelling from heaven, 3 inasmuch as we, having put it on, will not be found naked. 4 For indeed while we are in this tent, we groan, being burdened, because we do not want to be unclothed but to be clothed, so that what is mortal will be swallowed up by life. 5 Now He who prepared us for this very purpose is God, who gave to us the Spirit as a pledge.
6 Therefore, being always of good courage, and knowing that while we are at home in the body we are absent from the Lord— 7 for we walk by faith, not by sight— 8 we are of good courage, I say, and prefer rather to be absent from the body and to be at home with the Lord. 9 Therefore we also have as our ambition, whether at home or absent, to be pleasing to Him. 10 For we must all appear before the judgment seat of Christ, so that each one may be recompensed for his deeds in the body, according to what he has done, whether good or bad.
...13 For if we are beside ourselves, it is for God; if we are of sound mind, it is for you. 14 For the love of Christ controls us, having concluded this, that one died for all, therefore all died; 15 and He died for all, so that they who live might no longer live for themselves, but for Him who died and rose again on their behalf.
...17 Therefore if anyone is in Christ, he is a new creature; the old things passed away; behold, new things have come. 18 Now all these things are from God, who reconciled us to Himself through Christ and gave us the ministry of reconciliation, 19 namely, that God was in Christ reconciling the world to Himself, not counting their trespasses against them, and He has committed to us the word of reconciliation.
20 Therefore, we are ambassadors for Christ, as though God were making an appeal through us; we beg you on behalf of Christ, be reconciled to God. 21 He made Him who knew no sin to be sin on our behalf, so that we might become the righteousness of God in Him."
And there's the verse I use for my signature, John 11:25. Our physical deaths are only a temporary state. Not only are our conscious minds and spirits immediately in the presence of Jesus upon our physical deaths, but He Himself will at the proper time restore to us new, eternal, flawless physical bodies.
This is just a small sampling of the content of the Scriptures. My recommendation is that you start with the Gospel of John, then the remaining gospels. Next I would recommend the epistle to the Romans. Then I'd read the remaining epistles and Revelation. Read them all over and over and over. The Lord will give you a "peace that surpasses all comprehension." (Philippians 4:7)
I can tell you than my beloved wife, Annie, had an incredible sense of peace and confidence and was eager to be done with this life here and go on to enjoy the presence and glory of Jesus whom she knew and loved, and Who knew and loved her. Annie's forum username was Abbas Child and you can find thousands of her posts. She also started a thread titled "Christians Here for Support" which periodically gets closed because of its size, but then restarted. The current one was started by Judith and is under the "Other" section. She entitled it "Christians Here to Support". So you might want to visit those threads.
The Lord's grace and peace be with you, Darryl.