Not sure what to think :(

numerounomumma

New member
Joined
Sep 27, 2024
Messages
2
Reason
Learn about ALS
Diagnosis
00/0000
Country
AU
State
QL
City
BRISBANE
Hi all, sorry for the super long post im about to post. I feel like I need some form of clarity or reassurance at least. I guess I will start at the beginning ( and YES i have read through the stickies).

I am a 29 y/0 old female, I have children, I am currently 5 months PP from having my latest bub. In 2016 i started having twitches (facs) and a large amount of other strange symptoms i could not explain. These included , extra saliva, muscle aches cramps and pains (widespread), stiff neck, body shakes and weakness, exhaustion, globus sensation , spasicity in my hands and feet, weird stomach pains and even what felt like breathlessness. I struggled for months to do the normal things i would normally do. I also had ataxia and even went to the hospital once because i could not stand.

They tested my blood and electrolytes and said they couldnt understand why i was so off balance. No follow up was done. My symptoms somewhat got better and went away. I also had new ones that appeared and then disappeared. This lasted for over a year with no answer from my gp aside from that I had some mosquito virus and could have chronic fatigue syndrome. I got better and haven't had symptoms since 2018.

I know ALS is a disease that moves over time, so I guess you are all thinking if you had ALS 8 years ago or symptoms of it, you'd have serious problems right about now. I was curious as to whether pregnancy can somewhat hide your symptoms or if it would just make it worse. I had a three-year gap in between having children and have only just started having strange symptoms out of nowhere again. These include numbness in my back, face, sometimes arms and legs - where it feels weird to move or do facial expressions, yawning all the time, pains in my legs and arms, muscle twitches in a few places, my left arm. Non dominant feels funny it feels numb. I don't have pain. It's been like this for a few days. I can still move it and do mostly everything I normally do , but the feeling of it is like its dead. If I pinch my arm I feel it but it still feels strange.

I have noticed that I am doing things slower with that arm though and I will drop things like pegs when I am hanging out washing or dishes when I am washing them. I also noticed I have a weird feeling in my right leg sometimes that makes me almost limp, like my leg is also dead- but it comes and goes. I don't think I have atrophy of any kind, and I don't know if id define what I have as clinical weakness, but I just don't feel right. I feel like I can do my day-to-day things, but this is worrying me abit as I don't have any answers, and I keep thinking to myself what if I am so unlucky that I do have it.
 
Last edited by a moderator:
No, pregnancy cannot hide ALS. You might have labs done again as some of what you say sounds possibly postviral. You can also see the doctor to test your strength.

Postpartum, the various vitamin B deficiencies are common, as is iron, calcium, and magnesium, and these can cause issues such as you describe, so those are considerations in your diet and supplements, that you can discuss with the doctor as well.
 
Thank you for your reply. I had bloods to check for vit deficiencies and all are within normal range apparently. I guess thats what also brought me this forum.
 
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