numerounomumma
New member
- Joined
- Sep 27, 2024
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- AU
- State
- QL
- City
- BRISBANE
Hi all, sorry for the super long post im about to post. I feel like I need some form of clarity or reassurance at least. I guess I will start at the beginning ( and YES i have read through the stickies).
I am a 29 y/0 old female, I have children, I am currently 5 months PP from having my latest bub. In 2016 i started having twitches (facs) and a large amount of other strange symptoms i could not explain. These included , extra saliva, muscle aches cramps and pains (widespread), stiff neck, body shakes and weakness, exhaustion, globus sensation , spasicity in my hands and feet, weird stomach pains and even what felt like breathlessness. I struggled for months to do the normal things i would normally do. I also had ataxia and even went to the hospital once because i could not stand.
They tested my blood and electrolytes and said they couldnt understand why i was so off balance. No follow up was done. My symptoms somewhat got better and went away. I also had new ones that appeared and then disappeared. This lasted for over a year with no answer from my gp aside from that I had some mosquito virus and could have chronic fatigue syndrome. I got better and haven't had symptoms since 2018.
I know ALS is a disease that moves over time, so I guess you are all thinking if you had ALS 8 years ago or symptoms of it, you'd have serious problems right about now. I was curious as to whether pregnancy can somewhat hide your symptoms or if it would just make it worse. I had a three-year gap in between having children and have only just started having strange symptoms out of nowhere again. These include numbness in my back, face, sometimes arms and legs - where it feels weird to move or do facial expressions, yawning all the time, pains in my legs and arms, muscle twitches in a few places, my left arm. Non dominant feels funny it feels numb. I don't have pain. It's been like this for a few days. I can still move it and do mostly everything I normally do , but the feeling of it is like its dead. If I pinch my arm I feel it but it still feels strange.
I have noticed that I am doing things slower with that arm though and I will drop things like pegs when I am hanging out washing or dishes when I am washing them. I also noticed I have a weird feeling in my right leg sometimes that makes me almost limp, like my leg is also dead- but it comes and goes. I don't think I have atrophy of any kind, and I don't know if id define what I have as clinical weakness, but I just don't feel right. I feel like I can do my day-to-day things, but this is worrying me abit as I don't have any answers, and I keep thinking to myself what if I am so unlucky that I do have it.
I am a 29 y/0 old female, I have children, I am currently 5 months PP from having my latest bub. In 2016 i started having twitches (facs) and a large amount of other strange symptoms i could not explain. These included , extra saliva, muscle aches cramps and pains (widespread), stiff neck, body shakes and weakness, exhaustion, globus sensation , spasicity in my hands and feet, weird stomach pains and even what felt like breathlessness. I struggled for months to do the normal things i would normally do. I also had ataxia and even went to the hospital once because i could not stand.
They tested my blood and electrolytes and said they couldnt understand why i was so off balance. No follow up was done. My symptoms somewhat got better and went away. I also had new ones that appeared and then disappeared. This lasted for over a year with no answer from my gp aside from that I had some mosquito virus and could have chronic fatigue syndrome. I got better and haven't had symptoms since 2018.
I know ALS is a disease that moves over time, so I guess you are all thinking if you had ALS 8 years ago or symptoms of it, you'd have serious problems right about now. I was curious as to whether pregnancy can somewhat hide your symptoms or if it would just make it worse. I had a three-year gap in between having children and have only just started having strange symptoms out of nowhere again. These include numbness in my back, face, sometimes arms and legs - where it feels weird to move or do facial expressions, yawning all the time, pains in my legs and arms, muscle twitches in a few places, my left arm. Non dominant feels funny it feels numb. I don't have pain. It's been like this for a few days. I can still move it and do mostly everything I normally do , but the feeling of it is like its dead. If I pinch my arm I feel it but it still feels strange.
I have noticed that I am doing things slower with that arm though and I will drop things like pegs when I am hanging out washing or dishes when I am washing them. I also noticed I have a weird feeling in my right leg sometimes that makes me almost limp, like my leg is also dead- but it comes and goes. I don't think I have atrophy of any kind, and I don't know if id define what I have as clinical weakness, but I just don't feel right. I feel like I can do my day-to-day things, but this is worrying me abit as I don't have any answers, and I keep thinking to myself what if I am so unlucky that I do have it.
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