WellsRuby
Distinguished member
- Joined
- Mar 16, 2012
- Messages
- 187
- Reason
- Loved one DX
- Diagnosis
- 03/2011
- Country
- US
- State
- Texas
- City
- Houston
My husband has ALS. He has right foot drop and wears a foot brace and it has effected his right hand too and moving to the left hand. He has just started slurring a few words when he is tired. He is retired and I'm still working. I was planning on working for another year if he doesn't need me before then. He is on a trip right now and has been gone for about a week. His absense has made me realize how alone it feels without him and has made me rethink working. I hate this disease in that you don't know what to expect and everyone is different with progression. Maybe I shouldn't be working and should be enjoying what we have now and not wait until he needs me to be home. I will hate looking back and wishing I had that year with him. I guess I'm rethinking work. Any advice?