andonovj
New member
- Joined
- Sep 22, 2022
- Messages
- 6
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- CZ
- City
- Brno
Dear all
I know that this qustion most probably has been answered by now many times, but they say that ALS can start and appear in many different ways, so I am sorry again to bother you.
I am 33 years old IT guy and from July 2022 I started noticing a strange feeling in my left arm and left leg. I started to have occasional fascticulation later on my left leg. I started reading about ALS and I was extremely scared and worried. Before 2-3 weeks, I couldn't move my left pinky up for 1-2 days (now it is almost normal). I don't have cramps as well.
I did two EMG/NCV and they showed only some minor problems in my spine, but nothing pathological (according to the lab).
My neurologist also didn't see anything on the examination. My CK levels were initially normal, but then on 03 of September they were 8x the upper limit and on 12 of September they were 1.8x the upper limit.
My fasticulations are not constant, they are more in the morning and occasional., they are also mainly on my left leg.
My question is: Did your fascticulations were also occasional at the begining or they were constant ? Also, did you have cramps all over the body or only on the side of the onset.
Once again, I am sorry to bother you, but I am extremely worried.
Best regards
Julien Andonov
I know that this qustion most probably has been answered by now many times, but they say that ALS can start and appear in many different ways, so I am sorry again to bother you.
I am 33 years old IT guy and from July 2022 I started noticing a strange feeling in my left arm and left leg. I started to have occasional fascticulation later on my left leg. I started reading about ALS and I was extremely scared and worried. Before 2-3 weeks, I couldn't move my left pinky up for 1-2 days (now it is almost normal). I don't have cramps as well.
I did two EMG/NCV and they showed only some minor problems in my spine, but nothing pathological (according to the lab).
My neurologist also didn't see anything on the examination. My CK levels were initially normal, but then on 03 of September they were 8x the upper limit and on 12 of September they were 1.8x the upper limit.
My fasticulations are not constant, they are more in the morning and occasional., they are also mainly on my left leg.
My question is: Did your fascticulations were also occasional at the begining or they were constant ? Also, did you have cramps all over the body or only on the side of the onset.
Once again, I am sorry to bother you, but I am extremely worried.
Best regards
Julien Andonov