WrestlingMom
New member
- Joined
- Mar 23, 2008
- Messages
- 2
- Reason
- Loved one DX
- Diagnosis
- 11/2007
- Country
- US
- State
- Louisiana
- City
- Baton Rouge
My husband's uncle was diagnosed with ALS in Nov. of '07. We thought it would be a slow progression, but unfortunately that does not seem to be the case. He was recently fitted with a wheelchair and scooter and the last time I spoke with a family member I was told he now required help feeding himself and no longer answers the phone. His wife does most of the caregiving and there is an adult son who lives at their home and also helps out, mostly in the evenings. We've offered to help out in any way, but our aunt seems hesitant to leave his side and I believe she wants to spend every precious minute left of his life with him. My heart breaks for this beautiful couple. I know she is depressed and needs a break but I feel as though we would be intruding if we gently persuaded her to get out of the house for a few hours while we watched over him & kept him company. I'm also at a loss as to how we can help other than fixing meals for them or offering to relieve her. If she doesn't want to leave the house, I thought about reading to our uncle or reminiscing over old photos, but again, I don't know if it's appropriate. Any suggestions or advice anyone can offer on ways we can help out or ideas to pass the time would be so greatly appreciated.