Not sleeping and food still not agreeing

Status
Not open for further replies.

aspen07

New member
Joined
Oct 21, 2007
Messages
7
Reason
Loved one DX
Diagnosis
07/2007
Country
US
State
colorado
City
denver
Quick ? MIL still not sleeping and only getting 3-4 hours of sleep a nite, she seems just not able to sleep, some cramps and just can not rest... Also feeding pump, makes her get up quite often to use the restroom.. its only 237 ml in 5 hours.. not much, but she feels its the pump.. i thought i would ask , is this not sleeping thing part of ALS, just not able to get settled enough for sleep and do food pumps disturb your sleep patterns.. thanks again,
aspen07
 

landscape

Active member
Joined
Jan 14, 2007
Messages
82
Reason
CALS
Diagnosis
07/2006
Country
CA
State
Western Provinces
City
Erehwon
Aspen, I'd suggest your MIL gets her CO2 levels checked. My PALS experienced poor sleep & need to get up to urinate frequently but without the usual indicator of headache and without an additional drop in FVC. When examined his CO2 levels were very high. The provision of a Bipap improved sleep++ over several weeks/months. Sometimes the need to get up frequently in the night may possibly be the poor sleep rather than the other way around. Just a thought . . .
 
Status
Not open for further replies.
Top