not happy

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Ltman

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Apr 25, 2015
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Country
cb
State
wv
City
huntington
:cry: seems like the dr's don't want anything to do with me Just pass me off so they don't have to deal with me Im not the smartest person I forget things and forget to give them all my symtoms my mind goes blank sometimes ive seen probly more than 10 dr I was at dr last week she wants me to see rheumatology again Its ben over 3 years I just keep getting weaker with reall no answer + now im losing my balance I don't want to go back to dr for them to keep shoping me around
 
I would get copies of all the tests and office notes from every doctor you have seen. I would make a.lit of symptons including dates and examples if possible. For example, april 25 2015 hand weakness increased now I can not pick up an 8 ounce can versus a 15 ounce can before.

Next time you visit a doctor take all the test reports, office notes, medication list, and symptom timeline with you. It will make things clearer and you won't forget anything. Take a family member or friend to the appointment with you and bring a list of questions you want answered.
 
Have they checked out your heart?
 
Sorry for the rant right off the bat lol Thanks for the support And advise I got most of my records in hand now Im going to try and keep a detailed log so I wont forget anything Im seeing a doctor in Cleveland now Im pretty much in this myself ive asked people to go to dr with me but they always back out Ive had tests after test no 1 can seem to give me answer for my weakness I don't no if they have cheak my heart but I think im in fairly good shape Thanks Anthony
 
Anthony,

I'm from WV too. I went to Cleveland Clinic in September of last year and they sent me away telling me to drink tonic water and take magnesium. Finally went to WVU Ruby Memorial and saw Neuromuscular Specialist Chris Nance. He runs the ALS Clinic at WVU. He diagnosed me in less than 1 hour.

Have you been to WVU?

Vince
 
They give me magnesium to Ive ben there 2 times last time I was there I showed her my wrist because I forgot to tell her about it the first time I was there I can hold it straight with pretty good strength but when I drop it down I cant lift it back up at all she said its not in the nerve and that's not how to test it My mind went blank after that I didn't no what to say afterwards Ive not ben to wvu but am thinking about it
 
ltman should you be posting in the Do I have section as you don't seem to have a diagnosis?
 
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