roxaclou
New member
- Joined
- Apr 19, 2012
- Messages
- 1
- Reason
- Learn about ALS
- Country
- CA
- State
- Alberta
- City
- Valleyview
:roll: Well I am one of those the Doctor's don't know... Every blood test known to man was undertaken in the last three year. Been through so much loss of family not understanding I can't keep up anymore. :evil: Your just lazy or faking why would I I have always been a hard work working two or more just being there for my Sister. Always willing to help. Still want to but I am not able as my muscle just don't allow me to.. I've had the battle for a while so I am getting used to pacing myself.
Through all the test and examination we have come to the conclusion it is NOT ms:mrgreen: I have feeling through out my body hyporeflexive bilaterally in upper extremities, positive upper limb tension on left, and hyporeflexive on the left Achilles. We found a C6-7 disc osteophyte that was causing moderate mass effect on the spinal cord without signal loss. Finally consulted with a neurosurgeon hoping he would operate and I can gain my mobility and energy back. They were squashed when he said Due to other abnormal observation above the level of injury he could not recommend surgery until "it" was ruled out. I asked what "it" was he replied he wasn't a diagnostic Neurologist he was a surgeon. He was not confident that the surgery would help me or I would heal from it as it maybe neuro/muscular, but I DON'T fit into a medical diagnostic box
I am treated well by my family Doctor and she asks if the medication helps me. They have given me everything to help with the tightness and pain from the spasms. I need encouragement even though I don't have the a confirmed diagnoses. My pain and weakness is real and steady. It is like a beast in the night when I went off my baclofen for a couple of months I was waking up with hands curled in and toes pointed. Spasms suck... Went back on the baclofen and it been better. I now have had muscle fasciculations in my deltoid muscle, and rib cage it didn't hurt very much kind of cool to see. anyways any encouragement will be great. Note I am married and 35 years old.
Through all the test and examination we have come to the conclusion it is NOT ms:mrgreen: I have feeling through out my body hyporeflexive bilaterally in upper extremities, positive upper limb tension on left, and hyporeflexive on the left Achilles. We found a C6-7 disc osteophyte that was causing moderate mass effect on the spinal cord without signal loss. Finally consulted with a neurosurgeon hoping he would operate and I can gain my mobility and energy back. They were squashed when he said Due to other abnormal observation above the level of injury he could not recommend surgery until "it" was ruled out. I asked what "it" was he replied he wasn't a diagnostic Neurologist he was a surgeon. He was not confident that the surgery would help me or I would heal from it as it maybe neuro/muscular, but I DON'T fit into a medical diagnostic box
I am treated well by my family Doctor and she asks if the medication helps me. They have given me everything to help with the tightness and pain from the spasms. I need encouragement even though I don't have the a confirmed diagnoses. My pain and weakness is real and steady. It is like a beast in the night when I went off my baclofen for a couple of months I was waking up with hands curled in and toes pointed. Spasms suck... Went back on the baclofen and it been better. I now have had muscle fasciculations in my deltoid muscle, and rib cage it didn't hurt very much kind of cool to see. anyways any encouragement will be great. Note I am married and 35 years old.