Good Morning Everyone,
Henry has not slept well now for over 3 years. He is awake alot of the night. Before in the beginning, I think it was more his mind keeping him awake, now it is the pain, and not being able to move his arms and legs. He gets pressure point aches and pains horribly. This I know is standard for this stage of als, but, I do not get much sleep. I am up several times during the night. I get up tired, go to bed tired. Henry naps during the afternoon now, he never used to before. Again, I think that this is due to the fact that his lung capcity is so low, and he is so , so, tired. Glad to hear that you are in the trial in Toronto Deb, good for you! Hope it works. Would that not be great. We need some good news on the als front. Well, everyone, have a great day, I must go to work now. Just thought I would check in with all. Love to all...
Carol