hi Everyone,
My husband (diagnosed January 2009 with slow progression bulbar onset ALS) has literally not slept in over a month and a half. Nothing the doctors give him works - Ativan, Remeron, Elavil, Lyrica, Apo-amitriptyline, Imovane, Zyprexa, Apo-oxazepam.
He will try Valium (which I suggested two months ago) tonight. The spitting and mind whirling around and around keep him up all night.
Has anyone had similar experiences and if so, what did they do to remedy them?
Really upset for him ( and of course for us, as it's affecting everyone. He can't sleep, can't work).
Oh yes, the Botox injection which was supposed to help the saliva/spitting, did nothing.
Argh.
Perplexed
My husband (diagnosed January 2009 with slow progression bulbar onset ALS) has literally not slept in over a month and a half. Nothing the doctors give him works - Ativan, Remeron, Elavil, Lyrica, Apo-amitriptyline, Imovane, Zyprexa, Apo-oxazepam.
He will try Valium (which I suggested two months ago) tonight. The spitting and mind whirling around and around keep him up all night.
Has anyone had similar experiences and if so, what did they do to remedy them?
Really upset for him ( and of course for us, as it's affecting everyone. He can't sleep, can't work).
Oh yes, the Botox injection which was supposed to help the saliva/spitting, did nothing.
Argh.
Perplexed