CindyM
Moderator emeritus
- Joined
- Sep 17, 2006
- Messages
- 3,556
- Reason
- Learn about ALS
- Country
- US
- State
- New England
- City
- Anytown
Well I just got back from the ALS clinic and Doctor Sad-sack told me that yes, I have a neuro-muscular disease but he doesn't know which one yet. He also said at some point we may want to do a muscle biopsy but in his opinion, at the stage my symptoms are at, he doesn't expect it to be very conclusive just yet.
He also said that until now he'd been looking for just neurological problems. Gosh, he's so far behind in his thinking than the rest of my Docs and even my own self! Plus we discovered another skill I have lost: I cannot jump off the floor any more so I guess no more hop scotch for me! :-D
He also told me a lot of what I already knew: he said I would not get any better (duh) and that I might not get worse for a long time (I know.) And he told me to come back in 2 months - presumably to see if I get worse during that time.
Then I showed him a book I picked up in the lobby by Kurt Vonnegut. Inside is this joke: "There is no reason good cannot triumph over evil if only angels will get organized along the lines of the Mafia." And he actually laughed. So we might have to change his kicname.
Meanwhile, I am going keep on keeping on!
He also said that until now he'd been looking for just neurological problems. Gosh, he's so far behind in his thinking than the rest of my Docs and even my own self! Plus we discovered another skill I have lost: I cannot jump off the floor any more so I guess no more hop scotch for me! :-D
He also told me a lot of what I already knew: he said I would not get any better (duh) and that I might not get worse for a long time (I know.) And he told me to come back in 2 months - presumably to see if I get worse during that time.
Then I showed him a book I picked up in the lobby by Kurt Vonnegut. Inside is this joke: "There is no reason good cannot triumph over evil if only angels will get organized along the lines of the Mafia." And he actually laughed. So we might have to change his kicname.
Meanwhile, I am going keep on keeping on!