Footers
New member
- Joined
- Mar 18, 2019
- Messages
- 8
- Reason
- Learn about ALS
- Country
- Ger
- State
- Ger
- City
- Koln
Dear all,
thank you very much for taking the time to read this and I wish all of you the very best.
I have read the stickies and I know that a lot points away from ALS, however my neurologist cannot really tell me what is going on so I thought I'd ask.
I don't know if it is related but in since December I've had neck problems from strong tightness which was diagnosed by an orthopedist who prescribed me physiotherapy. My left arm has felt weaker since then but my right hand/arm are my dominant ones and I don't have any failure.
Fast forward to Feb when I had a doctor's appointment for a prescription (have to take thyroid medication) where I told him that my left foot doesn't roll as smoothly as my right one and standing on toes is more difficult however possible. He still seemed alarmed and referred me to the neurologist for a nerve conduction study and as the story goes the neurologist found nerve damage in the f-wave ?
He sent me to an MRI and wrote "radiculopathy" on the paper. The MRI showed no disc damage but the neurologist said that the area at my lower spine shows changes that are coherent with the f-wave results and did various blood tests. Everything came back negative except for Lyme disease. However the results rather indicated a past infection. He wants to do another test in two weeks.
I asked him about ALS and he said I don't have it because my reflexes are normal and they tested my motoric potential through a magnet thing on my head (sorry, I am not a native speaker and don't know how you call it) and that showed nothing.
But when I asked him about other possible diseases if Lyme turns out to be a dead end street, he said that we excluded everything and sometimes you cannot find a cause and would check again in 6 months. That worries me a lot because I have read that ALS is found through excluding everything else.
Since the nerve conduction test I have been feeling twitches in both legs (I assume they can be psychological) and my left hand feels weaker too plus there are some fasciculations in the thenar.
My neurologist said he sees no need for an emg.
Now, my left leg is definitely weaker (as the nerve conduction has also proven) and so is my left hand/arm (which wasn't checked though) but I don't fall, drop anything or fail.
My worries are the obvious weakness, the twitching (even though that worries me the least) and the lack of explanation for all of this.
I am sorry if this sounds stupid to you and I apologize if I am wasting your time. I wouldn't be worried if there hadn't been a negative result in the f-wave that matches my weakness.
All the best to you
thank you very much for taking the time to read this and I wish all of you the very best.
I have read the stickies and I know that a lot points away from ALS, however my neurologist cannot really tell me what is going on so I thought I'd ask.
I don't know if it is related but in since December I've had neck problems from strong tightness which was diagnosed by an orthopedist who prescribed me physiotherapy. My left arm has felt weaker since then but my right hand/arm are my dominant ones and I don't have any failure.
Fast forward to Feb when I had a doctor's appointment for a prescription (have to take thyroid medication) where I told him that my left foot doesn't roll as smoothly as my right one and standing on toes is more difficult however possible. He still seemed alarmed and referred me to the neurologist for a nerve conduction study and as the story goes the neurologist found nerve damage in the f-wave ?
He sent me to an MRI and wrote "radiculopathy" on the paper. The MRI showed no disc damage but the neurologist said that the area at my lower spine shows changes that are coherent with the f-wave results and did various blood tests. Everything came back negative except for Lyme disease. However the results rather indicated a past infection. He wants to do another test in two weeks.
I asked him about ALS and he said I don't have it because my reflexes are normal and they tested my motoric potential through a magnet thing on my head (sorry, I am not a native speaker and don't know how you call it) and that showed nothing.
But when I asked him about other possible diseases if Lyme turns out to be a dead end street, he said that we excluded everything and sometimes you cannot find a cause and would check again in 6 months. That worries me a lot because I have read that ALS is found through excluding everything else.
Since the nerve conduction test I have been feeling twitches in both legs (I assume they can be psychological) and my left hand feels weaker too plus there are some fasciculations in the thenar.
My neurologist said he sees no need for an emg.
Now, my left leg is definitely weaker (as the nerve conduction has also proven) and so is my left hand/arm (which wasn't checked though) but I don't fall, drop anything or fail.
My worries are the obvious weakness, the twitching (even though that worries me the least) and the lack of explanation for all of this.
I am sorry if this sounds stupid to you and I apologize if I am wasting your time. I wouldn't be worried if there hadn't been a negative result in the f-wave that matches my weakness.
All the best to you