Nina, you were a great comfort to your mum, and please know that she felt your love/commitment all of the time. My husband passed away while I was out (selfishly?) enjoying 30 min. in our pool. In 30 min., he was gone. We can't always "be there" at the exact moment of passing, but our loved ones / PALS may want to save us from that exact moment, if they can. Your mum is free of The Beast, and hopefully living free and happy on the other side without ALS.