night time - worst time

Status
Not open for further replies.

patgayle

Active member
Joined
Sep 20, 2012
Messages
60
Reason
Lost a loved one
Diagnosis
05/2012
Country
JAM
State
Westmoreland
Greetings, my husband suffers enormously at night, the longest period he sleeps for is 2 hours, after that he must be gotten up and out into the geriatric wheelchair for anywhere between 30-45 minutes. Finding a comfortable position in the bed or the chair is daunting endeavour, the slightest wrinkle or sense of imbalance drives him crazy. We live in the carribean and there is no outside support except for a neurologist 50 miles away who has limited experience with the disease, not to mention certain drugs are not available here. But I can say for sure nights are the worst time for both of us.
I would say that he is on the downward slope of this disease, he has next to no use of his legs, his arms are very weak, his voice has lowered, he is experiencing cognitive difficulties, is unable to feed himself and chewing is becoming more difficult as is swallowing.
But we soldier on and it has become a little easier since finding this forum. Many thanks
 

panguinjen

Senior member
Joined
Mar 27, 2012
Messages
523
Reason
Lost a loved one
Country
US
State
CA
Welcome patagyle to the club no one wants to belong to. I'm sorry you have such limited resources! If you can elevate the head of his bed about 30 degrees (7" wedge) he should be more comfortable. See if your neuro can get him a bipap with nasal pillows since he's having trouble swallowing. Have him pull his chin down when he swallows to make it easier and keep food and liquids out of his lungs. There are others here with far more experience than I with cognitive issues. Keep us posted and ask, ask, ask!

Jen
 
Status
Not open for further replies.
Top

AdBlock Detected

We get it, advertisements are annoying!

Sure, ad-blocking software does a great job at blocking ads, but it also blocks some useful and important features of our website. For the best possible site experience please take a moment to disable your AdBlocker.

I've Disabled AdBlock
No Thanks