Samantha01
New member
- Joined
- Jul 6, 2008
- Messages
- 5
- Reason
- Friend was DX
- Country
- UK
- State
- Greater London
- City
- London
Hi, I wondered if anyone could help? My husband was diagnosed with ALS in October and has rapidly deteriorated. Sadly he has also suffered a rare type of dementia related to ALS/MND. The problem is that he has not been able to sleep at night for some time now. He is constantly calling out and groaning, but this seems more anxiety related than pain related. He has been into hospital recently to get to the bottom of this, but everyone seems really puzzled by this symptom not usually related to ALS?
Does anyone else know of anything similar. My husband is not able to communicate in any way due to lack of speech and the dementia I mentioned and I really want to help. We have three small children and the house is getting chaotic at night - everyone is worn out!
Any advice would be really appreciated.
Does anyone else know of anything similar. My husband is not able to communicate in any way due to lack of speech and the dementia I mentioned and I really want to help. We have three small children and the house is getting chaotic at night - everyone is worn out!
Any advice would be really appreciated.