Greetings all,
I wanted to briefly say hello and that I am here to learn. I'm new here. Currently my diagnosis is suspected motor neuron disease following my neurological exam, EMG and MRI done in September.
I have already sought advice on understanding my EMG results from a member here, but if others know of information that will help, it is much appreciated. My EMG is posted in my photo album, for now.
The neurological exam results say: Demonstrated moderate wasting of the left upper extremity compared to the right with brisk reflexes graded at 3 with moderate weakness of the left triceps, biceps, wrist flexors, extensors and hand intrinsics compared to the right. (Yes, typing can be tiring.)
EMG demonstrated denervation of all muscles in left upper limb with chronic repetitive discharges in proximal muscles, involuntary units high complex/polyphasic with volitional testing. (The neurologist only tested my left arm. I am a tight wad and we discussed that a second opinion would go further.)
My cervical spine MRI showed no evidence of disc protrusion, spinal stenosis or foraminal narrowing.
My second opinion is scheduled for December.
Now for the strange part....this condition has progressed slowly for 20 years. I know, I'm one of the lucky ones. In the past year it has become significantly more debilitating and the second opinion will look for evidence that it is spreading. I have muscle wasting in my left leg now, along with other things, which may or may not be related.
Twenty years ago I was told I had Sobue Syndrome (learned recently is means monomelic amyotrophy), it seemed to have reached a plateau and to go live my life. I did. Now....things have been going downhill a bit. So...I found all of you. For now, I learn, wait for the next EMG and keep being a Mom until they figure out why I am getting worse or if I just feel worse because my reserve tank is aging.
I have 16 year old triplets (no fertility) and a 27 year old son, am a newspaper reporter and divorced. Oh and I take care of my 90 year old Grandpa who is an amazing human being.
It's a really nice place you have here and I greatly appreciate all the resources I have found already. Bless you all.
Famdamily
I wanted to briefly say hello and that I am here to learn. I'm new here. Currently my diagnosis is suspected motor neuron disease following my neurological exam, EMG and MRI done in September.
I have already sought advice on understanding my EMG results from a member here, but if others know of information that will help, it is much appreciated. My EMG is posted in my photo album, for now.
The neurological exam results say: Demonstrated moderate wasting of the left upper extremity compared to the right with brisk reflexes graded at 3 with moderate weakness of the left triceps, biceps, wrist flexors, extensors and hand intrinsics compared to the right. (Yes, typing can be tiring.)
EMG demonstrated denervation of all muscles in left upper limb with chronic repetitive discharges in proximal muscles, involuntary units high complex/polyphasic with volitional testing. (The neurologist only tested my left arm. I am a tight wad and we discussed that a second opinion would go further.)
My cervical spine MRI showed no evidence of disc protrusion, spinal stenosis or foraminal narrowing.
My second opinion is scheduled for December.
Now for the strange part....this condition has progressed slowly for 20 years. I know, I'm one of the lucky ones. In the past year it has become significantly more debilitating and the second opinion will look for evidence that it is spreading. I have muscle wasting in my left leg now, along with other things, which may or may not be related.
Twenty years ago I was told I had Sobue Syndrome (learned recently is means monomelic amyotrophy), it seemed to have reached a plateau and to go live my life. I did. Now....things have been going downhill a bit. So...I found all of you. For now, I learn, wait for the next EMG and keep being a Mom until they figure out why I am getting worse or if I just feel worse because my reserve tank is aging.
I have 16 year old triplets (no fertility) and a 27 year old son, am a newspaper reporter and divorced. Oh and I take care of my 90 year old Grandpa who is an amazing human being.
It's a really nice place you have here and I greatly appreciate all the resources I have found already. Bless you all.
Famdamily