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tgirl

Member
Joined
Nov 23, 2010
Messages
12
Reason
PALS
Diagnosis
12/2010
Country
US
State
Oh
City
Canal Winchester
Hello, Diagnosed with MMN, they think, had first round of IVIG and it did help. I am a nurse and I really never understood the pain, anxiety, and anguish people go through with neuro muscular diseases. (and that is just trying to get diagnosed.) It is somewhat of a shocking revelation, that because of the nature of these diseases, the doctors don't know what you have either. It takes time. "have to wait to see what progresses". Really? I can be thankful that I am living in this time and place. 20 years ago I wouldn't have the treatment options I have today. When I realized that the doctors did not have all the answers, I decided I trusted God more than the doctors. I knew this in my head, but at that point, it became heart knowledge. I am thankful for my doctor and my treatment options. It just brings you to a new level of faith, and I am thankful for that also!
 
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