tgirl
Member
- Joined
- Nov 23, 2010
- Messages
- 12
- Reason
- PALS
- Diagnosis
- 12/2010
- Country
- US
- State
- Oh
- City
- Canal Winchester
Hello, Diagnosed with MMN, they think, had first round of IVIG and it did help. I am a nurse and I really never understood the pain, anxiety, and anguish people go through with neuro muscular diseases. (and that is just trying to get diagnosed.) It is somewhat of a shocking revelation, that because of the nature of these diseases, the doctors don't know what you have either. It takes time. "have to wait to see what progresses". Really? I can be thankful that I am living in this time and place. 20 years ago I wouldn't have the treatment options I have today. When I realized that the doctors did not have all the answers, I decided I trusted God more than the doctors. I knew this in my head, but at that point, it became heart knowledge. I am thankful for my doctor and my treatment options. It just brings you to a new level of faith, and I am thankful for that also!