- Nov 27, 2007
Hi- this is my first post. I was diagnosed yesterday at UCLA by Dr. Michael Graves. I was hoping for something short of "ALS". I was hoping that he would say "watch and wait". He said ALS. I first starting losing my balance and occasionally falling around May 2006. I fell and broke my ankle big time in July 2006. In July 2007 when I still just didn't feel right and was still losing my balance I went to my family physician. He said I was fine - couldn't tell that I was walking "funny". In August he sent me to a neurologist who did the usual MRIs, brain scan, pelvic scan and multiple blood tests. When he couldn't figure it out he sent me to UCLA for a muscle biopsy and EMG. They only did the EMG and more blood work to rule out auto immune issues. It is mostly in my ankles and legs. Although I have the muscle twitching all over. I get fitted for AFO's on Monday and got my Rx for rilutek (sp). I'm certain it has not even begun to sink in. Thanks for being there. I'm sure that I'll rely on these forums heavily. I have poured over them for the last month hoping that I really didn't need to do more than read.