Status
Not open for further replies.

TerryO

Member
Joined
Mar 22, 2007
Messages
18
Reason
PALS
Country
CA
State
Alberta
City
Rocky Mountain House
Hello everyone:) My husband was diagnosed in december 2006 . it has taken approx 2 yrs to get tothis diagnosed. his neuro here in edmonton wants to do a spinal tap just to rule out some types of lymphomas that only show in this fluid has anyone heard of this? His first symtom was a very weak ankle that kept rolling over and doctors said he sprained it!
He told them repeatedly there was no pain so how could it be a sprain. one doctor sent him for physio and she diagnosed nerve damage and referred to neuro. Right now he has weakness and atrophy on right side and slurred speech. i hope that if I am ever diagnosed with
any devastating disease that i will be half as strong as he is. My husband still gets up and goes to work everyday and will until he is unable to get there. We are seeing a naturopath in calgary and she seems to be very good. thanks in advance for the support of this website.
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Hi Terry. A spinal tap is a routine procedure to rule out spinal tumours and various other spinal cord injuries. If you are here on this forum then someone must have mentioned ALS. Hopefully it won't be. An ALS diagnosis can be a long and involved process. Try not to think the worst. It might not be as bad as you think.
AL.
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,543
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
Hi Terry. Welcome. Neuro-muscular problems are really hard to pin down so you and hubby will have lots of tests and waiting for appointments ahead of you. feel free to join us at any time. I found the search feature at the top of this screen to be a big help, as well. Hope you two solve what is happening with your husband soon! Cindy
 

Meg1

Distinguished member
Joined
Jul 5, 2005
Messages
118
Terry, I've never heard of lymphomas that can only be detected in spinal fluid but that certainly doesn't mean they don't exist. I can tell you, though, that they are an ALS differential I've never heard of. I think the key here is where the ALS diagnosis was rendered. If your husband was diagnosed at an ALS center, the spinal tap is probably unnecessary and your (presumably local) neuro may be grasping at straws. If you're not confident in the ALS diagnosis, my advice would be to seek a second opinion at an ALS center rather than dealing with a local neuro who thinks he knows more than an expert (if that, indeed, is what is going on here).

Cindy and Al--did you miss the part where Terry told us her husband had been diagnosed after two years of symptoms?
 

Jamiet

Senior member
Joined
Nov 27, 2006
Messages
616
Reason
Learn about ALS
Country
US
State
Louisiana
City
Carencro
Terry,

Welcome, we're here to support you in any way. Please feel free to ask any questions, come when your having a bad day and we'll be here or whatever, we're here for you.

It's a long, hard frustrating road, but we're all in this together.

Rgds,

Jamie
 

patricia1

Very helpful member
Joined
Sep 18, 2006
Messages
1,149
Reason
PALS
Diagnosis
7/1999
Country
US
State
newjersey
City
lopatcong NJ
Spinal taps are vEry safe now a days They will show MS Lymes proteins white cells and many more Do it all to rule out things that minic ALS I did Pat
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
No Meg I didn't really miss that part but in my part of the country an LP is uisually given before a diagnosis. As they say, rule out everything else then probably the only thing left is ALS.
AL.
 

liz

Senior member
Joined
Nov 9, 2006
Messages
642
Reason
PALS
Diagnosis
11/2006
Country
US
State
NY
City
Albany
Maybe it depends on where/how your symptoms first present. My doc ran tests (Xrays and CAT scans) to rule out lymphoma and lung cancer because of the possibility of tumors putting pressure on nerves somewhere in my shoulder area that might have resulted in the weakness/atrophy in my hand which is where things started and stayed for almost two years.

Liz
 
Status
Not open for further replies.
Top