scottishmum
New member
- Joined
- Mar 18, 2012
- Messages
- 9
- Reason
- PALS
- Diagnosis
- 03/2012
- Country
- UK
- State
- scotland
- City
- glasgow
hi all ,
i have been lurking on here for the past few months as i thought the dreaded diagnosis was coming. my symptoms started almost 4 years ago with right foot drop which progressed upwards in my leg , with left foot symptoms starting a year ago . i now have left foot drop and am continuing to walk around the house using 2 elbow crutches but my balance is awful cant go anywhere without a wheelchair. My EMG's show lower neuron damage and denervation in my legs but arms are still showing no damage. My first neuro didnt seem to have a clue and transferred me onto another who obviously knows his stuff.
he has said it is MND and he thinks it is likely to be ALS as my left elbow is showing brisk reflexes i am to go for another conduction type test - cant remember the name was so stressed at that point - and if this show upper neuron involvement then it'll be confirmed and he will start me on rilutek.
i have never been so scared in my life , i have 3 children 2 of whom are disabled and i dont have time to be ill. keep telling myself he is wrong but i know i have to deal with it , just wish i could stop crying . all my thoughts and prayers to everyone who has this disease in their lives
i have been lurking on here for the past few months as i thought the dreaded diagnosis was coming. my symptoms started almost 4 years ago with right foot drop which progressed upwards in my leg , with left foot symptoms starting a year ago . i now have left foot drop and am continuing to walk around the house using 2 elbow crutches but my balance is awful cant go anywhere without a wheelchair. My EMG's show lower neuron damage and denervation in my legs but arms are still showing no damage. My first neuro didnt seem to have a clue and transferred me onto another who obviously knows his stuff.
he has said it is MND and he thinks it is likely to be ALS as my left elbow is showing brisk reflexes i am to go for another conduction type test - cant remember the name was so stressed at that point - and if this show upper neuron involvement then it'll be confirmed and he will start me on rilutek.
i have never been so scared in my life , i have 3 children 2 of whom are disabled and i dont have time to be ill. keep telling myself he is wrong but i know i have to deal with it , just wish i could stop crying . all my thoughts and prayers to everyone who has this disease in their lives