Newbie

[onion]

Hi,
Yesterday my husband and I went to Shands medical center, neurology department for second opion of ALS diagnosis. And yes, my husband has ALS and has probably had it for two and 1/2 years. The misdiagnosis was do to SCI (spinal cord injury). He has no use of his arms, a little movement in both hands, cannot walk, and could stand up till a little while ago. I now use a lift. All of these symptoms came on so gradually over the past years. I don't know what to expect next. The doctor said the disease is in charge as it spreads. I don't want to be a downer, I just like to know what I'm up against. Can you help?
onion

 

[Al]

Jo Upoup. Tussz zua jewi vu ci jisi cav hmef zua guapf at. Vjisi ot e xiemvj ug opgusnevoup op vji tiesdj tidvoup ecuwi. Katv vzqi op e gix liz xusft us qjsetit epf ov xomm quopv zua op vji fosidvoup ug tuni vuqodt vjev nohjv jimq zua. Us katv etl xjev zua piif vu lpux. Xi'mm vsz vu jimq. EM.

 

[liz]

Ximduni. Tussz vu jies zuas pixt. Tvodl esuapf jisi gus exjomi epf zua'mm gopf gumlt vu taqqusv zua cuvj. Pu raitvoup ot uav ug cuapft tu etl exez.....

Mob

 

[CindyM]

Jo Upoup. O en tussz gus zuas jatcepf't FY. Cuvj ug zua esi ximduni vu etl epzvjoph epf wipv ecuav epzvjoph et zua incesl up vjot kuaspiz. Vji gumlt jisi esi siemmz desoph epf taqqusvowi. Qmieti liiq op vuadj!

 

[onion]

Ifov, duqz, qetvi, fuitp'v tiin vu xusl gus ni. Cav O fof etl e raitvoup: Xjev jeqqipt piyv? Zua emm tiin vu jewi vjot qevipv eptxis: "tussz, xi'si hmef zua jisi, vupt ug situasdit, xi'mm jimq xovj epz raitvoup zua jewi" O'wi csuxtif epf vjev't xjev zua tiin vu tez vu iwiszupi. Epf vjip vji qevsupoboph sinesl, "pu raitvoup ot uav ug cuapft raitvoup" Xjev vji jimm fuit vjev niep. O xepv upi raitvoup eptxisif: xjev jeqqipt piyv? Fenn O lpux civvis vu qutv vjot.....cav

 

[Al]

Xjev jeqqipt piyv ot zua jewi tuni fidotoupt vu neli. Fu zua xusl? Dep zua eggusf vu raov? Zuas jatcepf xomm piif 24 juas desi. Fu zua jewi jimq us dep zua essephi jimq vjsuahj vji ehipdoit vjev jimq EMT qevoipvt? EMTE, NFE. Fu zua xepv vu liiq jon juni et muph et quttocmi us qav jon op ep optvovavoup? Qavvoph ov cmapvmz op eptxis vu zuas raitvoup. Ji xomm hiv xusti. Ji xomm foi. Jux ji tqipft vji sitv ug jot mogi ot aq vu zua et ov tuapft moli ji dep'v fu epzvjoph up jot uxp epznusi. Tussz gus cioph cmapv cav zua fof etl. EM.

 

[onion]

UL O siemmz xepvif vu tez fennnn zua'si dmaimitt. Cav O xup'v ci tu essuhepv. ximm O haitt O en. Xjip zua cseli zuas pidl nepz ziest ehu, epf tuni jux siduwis upmz vu ci niv xovj emt, .....O siemmz fofp'v iwip sief zuas sitqupti, cideati O xet tuuuuuuu ephsz zua lpux puvjoph ug tdo,,,,....o'n tu vosif pux...fup'v jewi ipishz, xotj xi xisi tvomm op vji TDO devehusz, fup'v moli vjot, fup'v xepv vu ci op zuas gusan.

 

[Al]

Tussz Upoup cav O katv fup'v hiv xjev ov ot zua'si muuloph gus. Nezci tuniupi imti dep howi zua xjev zua esi muuloph gus. Pupi ug at xepvt vu ci jisi. Fup'v gushiv. O epf zuas jatcepf jewi EMT puv zua. Xi esi vji upit huoph vu foi. Fup'v hiv tu uwisxjimnif xovj timg qovz vjev zua muti tohjv ug vjev. EM.

 

[onion]

Emsohjv, huv nztimg vuhivjis. pu jesn niepv...

 

[Al]

Ul. O apfistvepf ov ot foggodamv gus zua. Fu zua jewi epz jimq? Desihowis caspuav ot e siem qsucmin xovj EMT. Iwisz upi ug at jet mutv ov jisi epf wipvif. Et muph et ov fuitp'v hiv niep tqosovif ov ot ul. Pu uggipti velip cav zua jef ni huoph vjisi gus e nopavi. Nezci zua'f moli vu tipf ni e qsowevi nittehi epf vsz vu iyqmeop nusi ecuav xjev zua xepv vu lpux. Ov nohjv ci ietois. Dmodl up optvepv nitehi ev vji vuq ug vji qehi epf ov xuslt moli ineom. Vzqi op EM gus vji qistup vu tipf ov vuu. EM.

 

[onion]

Siemmz, ximm O'n huoph vu ci xovj nz haz, et ji huit vjsuahj vji tvehit ug EMT, epf iwipvaemmz niivt fievj.....Xju't huoph vu ci vjisi xjip O fu? Fup'v howi ni zuas cammt---.

 

[Al]

O xuamf juqi zua xuamf jewi genomz epf gsoipft cav xovj ep evvovafi moli vjev O dep tii zua nohjv ci emupi.

 

[onion]

UL taqis nupovus
eqqesipvmz zua jewi vji xusf.
Epf huf cmitt

 

[Al]

Zit epf vji xusf ot TAQQUSV. Gus vjuti vjev lpux xjev ov ot vjiz xepv us piif. EM.

 

[onion]

ximm O haitt zua'wi jef zuas gap cz ni. dep zua vimm ni e xez vu sinuwi nztimg gsun vjot tovi. O siemmz fup'v vjopl zua'f howi ni ep jupitv eptxis. Qmieti tuniupi imti howi ni e dmai
vjeplt
upoup