MDedic
New member
- Joined
- Jun 5, 2022
- Messages
- 5
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- PL
- City
- Warsaw
Hi, I'm in a guy my early 30s. I'm a MD, but not neurologist.
I'm looking for some help and maybe infos about ALS. I don't have any family history of MND.
My story began in December 2021. When I came back from work, I started twitching. My both calves had fasciculations. Firstly I didn't thought about it, because there were many reasons of twitches, esp. coffee, hypomagnesemia etc. Last thing on my mind was ALS.
But the times go by and my calves were twitching like crazy. I didn't notice any kind of weakness, my neuro exam was normal, so okay. Just living with it.
In February 2022 I started to waking up at night because of parsthesias/numbness of my hands, especially 4th and 5th fingers. I went to the another doctor, made an cervical X-ray. Results: reduced cervical lordosis, degenerative changes, narrowed intervertebral space C6-C7.
I bought orthopedic pillow and that was good idea. But the fasciculations still were with me and they irregulary spread all over my body with constant presence in my calves. I noticed, that stress,caffeine and working out aggreviating them.
So, I went to neuro specialist in april, she examined me, check all the reflexes and told me: I understand that that you are concerned and thinking about MND, but in my opinion it's just BFS. From anamnesis I assume, that you are very stressed person and a think it's just this. There's no atrophy, no weaknes, no patological sign/reflexes.
I came back to my life, but started feeling more and more twitching. Made an another appointment to another neuro, she examined me and could even find twitches. She told me: no patological sign, maybe some tendencies to Babiński on right foot, but maybe it's just my perspective. In my opinion it's BFS. But I'm giving you refferal to hospital, check if you arent sure about my examination.
Nocturnal numbness in both hands came back.
I take a blood tests and only deficit I had was a vit. D (13 ng).
I went to third neuro. After exam, she told me that l have an anxiety and in her opinion it's just BFS. She gave me vitamin B complex. That was ca. 12th of May. I called my friend, who's mother is neuro and she told me the same thing, moreover she gave me a chance to being admitted to hospital.
About half of May I started to feel some strange things about my arms. It just like they aren't mine, like both tricepses are weak. Okay, so new symptom? Weakness? I started to feel like my hands lost their dexterity.
Of course, MND is about falling, not feeling. I still could do 60 pushups, so no - it's not that.
But later I started to feel that many of everyday things are a little harder for me. For example, brushing teeth because of those tricepses. I felt like they aren't mine and it's heavier.
And then, everything started to getting worse. I'm a MD, but I did the worst thing that person can do in this kind of anxiety - started to read about MND in the internet and started to examine myself. I examined myself with brisk jaw jerk and percussion myotonia. In the same moment I remembered that I'm having swallowing issues (oropharyngeal fase propably, examined by ENT specialist) since May 2020 (2 years). So I panicked, that brisky jaw jerk, swallowing issues, fasciculations equal... ALS.
Of course in this situation I called neuro and made an appointment in hospital (from Monday).
I'm really afraid about this. In a week my symptoms aggreviate - now I feel all the time weakness, my lips and nose started constantly twitching, my tricepses, which I assume are weak and "strange", started to twitch and painfully jerk after any exercise or move.
To sum up: constant calves twitching since December, nocturnal numbness from February, weakness of both tricepses from one week (arms like after very long workout), painful jerks in arms, calves from one week too. I'm full of anxiety and I understand power of mind/somatization, so I'm not convinced about truth of all symptoms.
Since I examined myself, I cannot eat, I cannot sleep well without meds and after short nap, I'm waking up with numbness in all of the limbs. My anxiety is killing me. I don't know answer for the question "could it be als?", but I'm encouraging myself to find that out. As a MD i know any other stuff that can be reason of those complaints. Many things are for, many against ALS.
I made this post, because during my hospital appointment I will post here any updates. Hope that somebody find that useful.
Wish me luck.
I'm looking for some help and maybe infos about ALS. I don't have any family history of MND.
My story began in December 2021. When I came back from work, I started twitching. My both calves had fasciculations. Firstly I didn't thought about it, because there were many reasons of twitches, esp. coffee, hypomagnesemia etc. Last thing on my mind was ALS.
But the times go by and my calves were twitching like crazy. I didn't notice any kind of weakness, my neuro exam was normal, so okay. Just living with it.
In February 2022 I started to waking up at night because of parsthesias/numbness of my hands, especially 4th and 5th fingers. I went to the another doctor, made an cervical X-ray. Results: reduced cervical lordosis, degenerative changes, narrowed intervertebral space C6-C7.
I bought orthopedic pillow and that was good idea. But the fasciculations still were with me and they irregulary spread all over my body with constant presence in my calves. I noticed, that stress,caffeine and working out aggreviating them.
So, I went to neuro specialist in april, she examined me, check all the reflexes and told me: I understand that that you are concerned and thinking about MND, but in my opinion it's just BFS. From anamnesis I assume, that you are very stressed person and a think it's just this. There's no atrophy, no weaknes, no patological sign/reflexes.
I came back to my life, but started feeling more and more twitching. Made an another appointment to another neuro, she examined me and could even find twitches. She told me: no patological sign, maybe some tendencies to Babiński on right foot, but maybe it's just my perspective. In my opinion it's BFS. But I'm giving you refferal to hospital, check if you arent sure about my examination.
Nocturnal numbness in both hands came back.
I take a blood tests and only deficit I had was a vit. D (13 ng).
I went to third neuro. After exam, she told me that l have an anxiety and in her opinion it's just BFS. She gave me vitamin B complex. That was ca. 12th of May. I called my friend, who's mother is neuro and she told me the same thing, moreover she gave me a chance to being admitted to hospital.
About half of May I started to feel some strange things about my arms. It just like they aren't mine, like both tricepses are weak. Okay, so new symptom? Weakness? I started to feel like my hands lost their dexterity.
Of course, MND is about falling, not feeling. I still could do 60 pushups, so no - it's not that.
But later I started to feel that many of everyday things are a little harder for me. For example, brushing teeth because of those tricepses. I felt like they aren't mine and it's heavier.
And then, everything started to getting worse. I'm a MD, but I did the worst thing that person can do in this kind of anxiety - started to read about MND in the internet and started to examine myself. I examined myself with brisk jaw jerk and percussion myotonia. In the same moment I remembered that I'm having swallowing issues (oropharyngeal fase propably, examined by ENT specialist) since May 2020 (2 years). So I panicked, that brisky jaw jerk, swallowing issues, fasciculations equal... ALS.
Of course in this situation I called neuro and made an appointment in hospital (from Monday).
I'm really afraid about this. In a week my symptoms aggreviate - now I feel all the time weakness, my lips and nose started constantly twitching, my tricepses, which I assume are weak and "strange", started to twitch and painfully jerk after any exercise or move.
To sum up: constant calves twitching since December, nocturnal numbness from February, weakness of both tricepses from one week (arms like after very long workout), painful jerks in arms, calves from one week too. I'm full of anxiety and I understand power of mind/somatization, so I'm not convinced about truth of all symptoms.
Since I examined myself, I cannot eat, I cannot sleep well without meds and after short nap, I'm waking up with numbness in all of the limbs. My anxiety is killing me. I don't know answer for the question "could it be als?", but I'm encouraging myself to find that out. As a MD i know any other stuff that can be reason of those complaints. Many things are for, many against ALS.
I made this post, because during my hospital appointment I will post here any updates. Hope that somebody find that useful.
Wish me luck.